I had a really nice "peaceful easy feeling" after our good news. It was amazing. I felt so calm, and peaceful and relaxed and happy. Well, that's sort of moved on. Last night we told Hans the plan (he'd heard it before, but he was really not allowing himself to hear or believe it). He is very upset to the point of pleading with us to do any other kind of treatment. In fact, he just told me to get on the phone with Dr. Marachelian and find another treatment. He then said, "if they make me do that treatment, I'd rather just live with it." Obviously, we feel we've got to go with his best shot. We'll get him through it. It's just a shame that it's so darn uncomfortable. I think Hans wouldn't blink if it wasn't for that foley catheter.
Anyway, some of you have reached out and asked if you could send a package to Hans. Yes! Please, that would be fabulous. I know he is a real toy monger, and it is almost obscene to send him another gift. But the truth is that it would make him feel loved and remembered, help him pass the time, provide a little bit of excitement and help get him through this difficult treatment, so thanks. You can email me at: firstname.lastname@example.org for our home address. Hans' Amazon.com wishlist is linked to our home address.
I just spoke with our Nurse Practioner, she said cards or packages addressed to:
505 Parnassus Ave
6th floor PCRC Attn: HANS WEBERLING
San Francisco, CA 94143
Should get to him no problem. We are planning to likely be there from Tuesday Feb 21, through Tuesday Feb 28th. By a stroke of luck, my mom already had a flight booked for that week to be here during he school's midwinter break. We'll get her Sunday. And Hans and I will head up to SF on Tuesday. Kevin is hoping to come up Thursday, we'll deploy my mom accordingly. Poor Roxie has another patient to tend to next week. Her dad is going in for a surgery today. Wishing Skip luck!
I will aplopgize in advance, I'll try, but I am likely to reach my height of whininess in the coming week. The MIBG is miserable for us, but we are well aware of the potential payoff. (A miracle!) You've been warned - if whiny lady is not your cup of tea, feel free to tune out for a week and a half and rejoin us on about Feb 29th for, hopefully, some joyful banter!
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.