Check out this thought provoking lil speech by an NB survivor, I just did and I think I needed to hear this tonight! Thanks, Tash!
We are having a calm and pleasant time at home since discharge, but a few of Hans' mystery symptoms are making these five days excruciating.
Right now, we are just hoping that they are able to book him for an MRI early this week. We need to get that done to inform Wednesday's meeting. You never know how a new hospital operates, but I had heard that one of three MRI machines is down and that appointments are scarce and hard to come by.
I wanted to put up a quick post to let you know that we are still at home and "okay", however loosely we are defining that these days. In truth we are pretty worried about our little guy and are anxious to have a plan to take care of him.
Thanks for checking up on us, Lara