Wow, wow, wow. I'm wonderfully relieved today with our news. Dr. Marachelian said she had to run down the hall to tell us that Hans responded very well to the MIBG therapy! There is no more disease in the vertebrae. There is no soft tissue disease! They actually now think there never was any soft tissue disease. They now think that the little spot behind the heart was a tiny bit of disease on the vertebrae that is now gone. There is still a touch of disease in the skull and a teensy spot of disease on his hip. Our onc actually said "he's not in remission, but he's almost in remission!"
Our plan is to go to UCSF next week and get through the terrible awful but yet again wonderful MIBG therapy one more time. Trust me, I'm not being a drama queen...it's pretty sucky. Hans will then get his stem cells back in about two weeks time. I looked at our doctor and I asked "does Hans just have a weird kind of Neuroblastoma???". She said, yes, he does!
We don't know what will happen, no one possibly could. But let Hans be one more illustration to us all that it is worth a shot. No one has the answers, no one knows the future, or has a crystal ball. But with faith and love and sometimes tremendous effort and a cup over runneth with hope, you just never know...
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.