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I just wanted to post another quickie update. Elle has had her friend Kelly here from TX for a nice, long weekend. My mom's bff Pat flew down to drive back up home with her. Us girls drove out to the beach in Ventura on Sunday. The water was cool, but it was pretty dang great to spend a day in the waves! My mom n Pat are somewhere in Santa Rosa this morning. Kelly flew out of Bakersfield today. It has been great having a house full this summer! We have a week until school starts and are looking forward to getting back into somewhat of a normal routine.
Hans actually got graduated out of radiation early. We went yesterday and Dr. Wong said that since the pain in all three sites is completely gone, and the bump on the head is now flat, we can go ahead and stop this round of radiation. Dr. Wong said he has had a really good dose. Hans has been having some leg pain, but we have been tweaking all the many pain meds, we will keep tweaking and see if we can get down to the bottom of it all. He is also having a couple of new issues, but we are trying to figure them out before I share too much more about them. We could possibly know more by tomorrow at our office visit with Dr. Marachelian. Things are changing so fast. Good, bad and otherwise. This weekend Hans' leg pain was so bad that he wasn't walking around the house much. We tweaked the meds and he is getting around! I'll post more later in the week when I know more. Hans is now finished with the first round of oral Vorinostat. Dr. Marachelian was checking the research to see how quickly she could possibly get away with starting his second round. Right now Hans' platelets are still low - we had a transfusion yesterday. ..
Thanks for checking up on us. And, thanks to those of you who donated to Hans' NCCS fundrasing page:)
4 comments:
Hooray for family, friends, and great times! Thank you for sharing your joys amidst life's daily challenges!
OOOH, Hans...your lady friends are lovely...and bring gifts of yummy chicken, too! Lucky you!
So pleased your last few days of summer break have been filled with friendship and fun, Elle!
Love and hugs,
Aunt Susy
Lara - You continue to amaze me! I am so glad Ellie got to have her friend over, and that all of you got to go to the beach--it's always so refreshing. Your mom is amazing too - glad Pat joined her. We are all good - Peyton is one big boy! Looks like a Finn. Love him to pieces, and all of you too. Always in my prayers, and Galilean's too. Aunt Weez
Happy to hear about the fun times spent with family snd friends. And that Hans seemed to respond to the radiation. We keep on praying and sending good thoughts your way.
Love you all,
Auntie Anna
Hello Hans it's Jennifer hope to see you soon at onos
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