- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
Monday, June 04, 2012
Thank the Lord, we have begun to treat these new tumors today! I will from here on refer to radiation as Xrt. It is a commonly used abbreviation, I like it, it is easier to type, so I'll use it:)
Today was a loooong day! Thankfully, Kevin was smart enough to VETO the scheduled audiogram for today! We'll do that later.
This is what Hans had to do today:
Get fitted into a body mold for xrt.
Get a new CT of the spine in that body mold.
Get xrt simulation for xrt to spine.
Receive first dose of IV Carboplatin along with prehydration and premeds.
Receive first dose of oral Etoposide.
Receive first xrt treatment to spine.
Gotta give it up to Kev for knowing that an audiogram at 1:30, or at any point in the day today was not a good idea:) This all took 5 hours down stairs. Hans was pretty wiped out after being up and about all of that time. Tomorrow we will pretty much repeat what we did to the spine today to the skull. Dr. Wong is waiting for Hans' chart from TX to determine just how much treatment Hans will get. We are anticipating doing this therapy from 12 to 18 or 20 days in total! Then, Hans will get stem cells, then we will scan then we will look for another therapy. Just to be clear, the antibody therapy has been stopped for the time being. It isn't necessarily ruled out for some point in the future, however.
Oh, how I hope and pray that Hans will respond to this stuff like he always always has. Dr. Araz says she feels like we are in about the same boat we were in last summer. Last summer was a scary boat, but he pulled out of it okay. No one knows what is going to happen, no one has a crystal ball. All we know is that we are all in this fight for Hans. His doctor is in it, his NP is in it. Kev and Elle and I are in it. It is the primary organizing factor of our lives. We are fighting for our boy. All of you are too. We know that last year we were in a pretty scary/terrifying situation. He pulled out of that nose dive! We are praying to hit replay on that miracle!
Thanks to: Our sweet girl, Elle for being here with us almost every single night here. Every day is just so much more fun and wonderful with our girl around! Thanks to: Roxie for driving (6 hrs) down from Santa Cruz to be with us! Thanks to Holly and Michael for driving in from your trip to Palm Spring to visit Hansie. Thanks to Sally for the cookies and for taking Elle for a very special Laguna Beach outing! Thanks to G'ma Kathy and Aunt Debi for coming in tomorrow. Thanks PL for the Lego, and thanks to the Tennesons for the special delivery! Thanks to the Toths and the Mars for animal care (Kevin has been here about half of the nights so our pets have needed care!) Thanks to the Hendersons for your generous gift! Thanks, people. My goodness.