I just got the scoop on radiation. Dr. Wong, our Radiation Oncologist, decided Hans' spine could tolerate 12 days of therapy (not wanting to over-do it from earlier treatments to the original 'tumor bed') and that his skull could tolerate a full 20 days.
Today is Day 3 for spine and Day 1 for skull. Looks like we'll be doing our xrt/carbo/etoposide routine until July the 3rd!!! Holy cow. Hopefully it'll be just the right amount!
The pain team is switching us to oral, longer lasting Oxycontin, in the hopes of coming home FRIDAY!
We've been spoiled. Elle has been spoiled! She's been on a Laguna Beach getaway with Sally! Thanks a bunch! Aunt Debbie and then Grandma Kathy got in last night and at this moment, they went to fetch Elle and have a girls day out. They came bearing gifts and I was glad to see Hans building last night and this morning. Last night he actually seemed to be doing a little bit better than he has in a while, even though his pain is at a pretty constant 4 - 6 (on a 0 to 10 scale) despite the amount of pain meds he is getting...
That's what I know now. Perhaps my next post will be from Bakersfield.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.