i am giving everyone a very quick note tonight. i am wiped out mentally and emotionally...but here's the quickie version:
New spots have popped up around the spine on a couple of spots, there is a new soft tissue spot on the skull, there are two boney lesions...pelvis and head...and the two spots we already knew about...the lymph node and the kidney/spinal area.
Overwhelming news, but not 'devastating' . The doctor said she did not see anything 'life-threatening'. Today our doctor said that Hans must have two different Neuroblastoma mutations. That has blown me away over the course of the day. Hans has not one Neuroblastoma to fight...but two. His boney disease tends to respond to one type of therapy, his soft tissue disease another.
We will begin to treat him on Monday. We will start up radiation therapy concurrently with chemotherapy. They will radiate his spine and skull. We will use Carboplatin. It is a 'radiosensitizer' chemo.
I am sort of wordless for any kind of thoughtful commentary on all of this.
Just keep on praying...looks like we have a taller order than we had bargained for for Hans' 18th miracle... I just wanna thank you for hanging in there with us. Thanks for your thoughts and prayers and all of the little and grand kindnesses. It is holding us up!
11 comments:
i pray for you all every day.......i look forward to reading your posts daily......with the exception of this latest.......keep fighting for hans!!!!!!!!!
I'm out here praying, sending healing light and energy, loving you all with the entirety of my heart and soul. I wish I could do more.
xoJana
Dear Hans, Kevin, Lara, and Elle...
Love and prayers flow from known and unknown sources!
May this knowledge accompany Hans and his amazing family and support teams as his new treatments progress!
My love and prayers have been lifted up and carried to you upon on the wings of the hundreds of birds singing joyfully as this new day begins!
Big hugs and smiles,
Aunt Susy
Well, the purest gold is tempered by fire. Your family has surely been in the fire for a long time, and I don't know of any people who are stronger and more determined to prevail than you are. I pray for your continued strength, and for some big miracle to turn things around. Thinking of you every day, many times a day, and always sending love!
Sounds like you have a plan and we're praying that Hans responds quickly so he feels better soon. We're available to help how ever we can...just let us know.
Love, hugs and prayers,
Aunt Holly and Uncle Michael
Thinking of Hans and praying for strength for all of you.
Love, Claire
So sorry to hear this news about your sweet boy. We are keeping him in our daily prayers and know that miracle #18 is around the corner. Keep fighting and stay strong and positive. Hans is an amazing responder to treatment and will beat it back down!!
Sending lots of Love & positive energy!
With lots of hugs always,
Jenny & Auntie Shelly
Good luck tomorrow! Hopefully Hans will feel good while continuing to be the responder we know he is! You're in our daily prayers--hang in there.
Love,
Sarah
what I suspected, but not what any of us wanted to hear. hugs and prayers for two simultaneous cures!
Prayers abounding for you all and especially our little soldier. It's time for him to get a break. Grace surround you all. Love & hugs, Wendi
PS - Grandma Kathy will spoil you all I'm sure!
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