About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Thursday, November 10, 2011

Rest

If one dream should fall and break into a thousand pieces, never be afraid to pick one of those pieces up and begin again.” - Flavia Weedn

Well, yesterday's counts weren't so hot for the possible stem cell collection, so I think we'll give it a shot next week just in case his counts take off. Yesterday's CD34 was a 3, and it needs to be more like a 10 for a possible collection, a nice 100 would make a better collection. For right now, the Rx is a little R&R and days at home. We've been in a medical marathon since Hans' 8th birthday back on July 15th - spending half of our life in the hospital, and even many many more days in the clinic on top of that. It's time for us to lick our wounds a little bit and breathe.

Hans had a nice HGB of 11.7, ANC of 3000!, but low platelets at 5. He got a platelet transfusion and had another platelet reaction of bad hives. We stopped the transfusion about 2/3 into it. We'll go back in for labs Monday, locally. I think I'll sign off for a few days and recuperate! Unless something comes up... I just handed Hans an oxycodone for a little bit of back pain, so who knows!!!

Thanks so much for your donations to Hans' CNCF park. Five years ago, Hans spent 17 days in the hospital as he was diagnosed with Neuroblastoma. I have been talking about his Five Year Campaign now for seventeen days. Way to go, we've raised $8,050 for the CNCF in his park to date. I'm so pleased - my 'secret' goal was $5,000 for five years! I feel indebted to the CNCF. We were able to go to the Parent's and Caregiver's Conference in July of 2007, and we created sort of a mental flow chart in the event that Hans ever relapsed. When Hans did relapse later in May of '08, I was the crazy lady in the ER saying, we'll go to New York, we'll go to Philly! We'll go to Vermont! We'll do anything for this boy! Thankfully, he has a tumor that actually seems responsive to many therapies, and yet it is persistent. We were blessed with a healthy dose of endurance, some emotional reserve, resources, a support network, and an endless supply of love both for and from this kid. We'll do anything we can for him. I believe that God gave Hans to us for a reason. And he gave us to Hans for a reason. We have to do our best by him, that's our job. It's what we're here for. Thank you for showing your support by donating in his honor! Thanks Roxie, for your contributions through Scarf it Up! as well. Today is the final day that 15% of your online order will go to the CNCF.

I plan to post some labs on Monday, unless something comes up.

6 comments:

Charon said...

Hi Lara,

So happy Hans ANC is back up and hopefully the platelets will follow soon. I am sorry it didn't work out this week for stem cells but hopefully you will all get to enjoy time together this weekend at home.... praying for no unplanned visits to the ER and for Hans' pain to remain in control. Hans is so fortunate to have the family he has and the support system all around taking care of you all. And you all are so fortunate to have him bless your life as he does every day!

Much love!
Charon

Carmen said...

So beautifully put Lara...

Yes indeed, each of you all are so very lucky to have one another.

Get that much needed rest. Always cheering for you!

Love,
Carmen, Jim, Michael and Ryan

Shannon said...

Yes please enjoy some down time. We will all pray for higher numbers for the stem cell harvest. Until then, relax & enjoy your sweet family at home :)

Brenda said...

You are such a beautiful person Lara..... and as all ways beautifully said.

Maybe rest is all Hans needs to get the numbers up!
We will pray that is so ...

Love,
Brenda,Kenneth,Skyler and Spencer

Anonymous said...

Enjoy the rest and your boy AT HOME! ;-)
Praying for continued days at home and the numbers you need for stem cell harvest!
The Nolen gang

Anonymous said...

Amidst 5 years of challenges Hans and all of the people who have been touched, miracles have presented themselves...one after the other! Lives are much richer and more dear!

May next week bring improved counts and a stem cell harvest!

In the meantime I wish all of you rest, fresh air, great giggles, and tasty treats and meals all day long! An afternoon snooze with Honey or Kitty O. will be cozy!

Love and hugs,
Aunt Susy