Quickie update from Starbucks before we head out.
More good news. Scan is still positive, only very FAINT. Can you dig it?
We saw Dr. Mosse today, whom I honestly (crazily?) think of a Doctor/Goddess,
and she listened very closely to our concerns of Hans' past rough 2 rounds. The plan is
to start Hans on Round 18 at a the same 60 mg dose of MLN8237, to watch him very carefully, and to have a low threshold for doing a dose reduction at the next Round. Hans is right on the cusp of two doses, so if he has another
rough round with mouth sores and transfusions, we'll go ahead and drop him down a bit.
Dr. Mosse also said she wished she had time to look at Hans' scan from 13 months ago, that first lit up positive in this spot, and compare it to this scan. She didn't have a chance to do it today (old scans get archived and aren't instantly accessible, I guess), but she is sure this scan is much fainter/smaller than a year ago...
Counts were surprisingly good. HGB 11.1, Plts 130 and ANC 4300! Go Neulasta... Whoa. Even our NP didn't think we'd be making counts this week.
So we're outta here. We'd like to thank the dear Tenneson family for rolling out the red carpet for us yesterday.
Thanks for checking up on us and for your thoughts and prayers for our little boy!
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.