I missed it last night, but caught this clip from another NB parent, Dr. Maris was on the CBS evening News last night with Dr. Sanjay Gupta. He is talking about the Immunotherapy ch 14.18that has dramatically decreased relapse rates among our kids. You may wonder if Hans will get this? Did he get this? Nope. It wasn't offered to him when he was diagnosed 4 years ago - it wasn't around yet (at least not at TCH, not to our knowledge!) But, thank God it is now. This is just the kind of research advancement NB needs.
But, there are other kinds of Immunotherapy that Hans still might be able to take advantage of at some point in the future, such as the 3F8 antibodies in New York. This is what we've all been voting for all month long (actually a new version that has less side effects than the current antibody - from what I understand the big side effect is PAIN). Thanks for your votes. Last I checked we were still in second. We just need to hold the lead six more hours. Arms Wide Open Here, or by texting Text* 102653 to Pepsi (73774). AND vote for Support Kids Cancer Research HERE or Text* 102462 to Pepsi (73774)!
Peace, Love & Cure,
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
1 comment:
Lara,
Thanks for leaving this post up! I finally took a moment to watch the video of Dr Maris. What a miracle! His dedication (over the past,is it almost 40 years?) is really making a difference.
And with the wonderful news of Arms Wide Open winning $250,000 who know how many more precious kids will be given a better chance at a long life..
And thank you for making us all of us aware of how we could help by voting!
Love,
Mom
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