We are home! It is nice to be home. But, oddly enough it is never an easy transition for me. There are always 1000 things to do in 4 hours as opposed to 4 days. That's just the way it goes. You run around filling prescriptions - usually we have to call around to a few pharmacies to places to find the right meds - and make impromptu shopping trips - squeeze in laundry and call in favors for rides to/from soccer. It's a zoo! BUT we are most certainly glad to be home. Glad Hansie is fine. Glad to be all together - all 4 of us and our 5 little pets (a dog, 3 cats and 2 frogs still kickin') under one roof! I flipped through my calendar and I don't think we've actually been inpatient since JANUARY! That sort of tells me that Hans is actually holding his own on this Millennium! Only 2 hospital stays and one transfusion in the 10 months/13 rounds since he has been on this med. He has stayed on track with his dosing and will actually complete the round tomorrow. Yay. We are to get a CBC locally Thursday and go back in for an Office Visit to follow up with Dr. R. next week. No one seemed that concerned about the pain in the head (it is only when he/we touch it) so we are just going to bring it up with our oncs and see what they have to say about it.
Thanks to Shawn and Dean for rides for Elle, and Michelle for offering to have Elle over after school, but we made it home!
That's about it. Gotta go to bed. We left for the hospital for a bake sale Friday morning and we are really just now getting home (Monday night). Feels sort of like the twilight zone.
Peace, Love and Cure
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.