Clinic went okay on Friday (just long!) Hans' Potassium came back up, I guess we just need to supplement more when he is under stress and on stress dose steroids. Hans is tricky! He was looking great Friday night to welcome his daddy home from his trip, and all day Saturday - but then he seemed a little off this morning, but now he seems to have perked up.
We'll go back in for counts and an office visit on Tuesday. Unless we need to go in sooner, hoping not! Hans has school on Monday and I just hate for him to miss his sessions.
I am just trying to keep up with Elle this weekend. Yesterday she got permission to miss soccer to compete in Destination Imagination for the first time. Her team had fun, but didn't place in the top three. The up side is that her friday mornings are free again, and we don't have to try to figure out how to possibly make it to compete in Regionals, State, National and possibly World Competition! What an event - I've never been! There sure were a lot of dedicated adults volunteering their time to coach and judge. Wow. She also had a cookie shop last night at Hobby Lobby. I was able to drop her off and attend Shannon's kick off party for the Shaving for Seany St. Baldrick's event. Hans' ANC was just a little low for him to do much partying, but we worked in multiple trips to the park and lots of fun at home.
This morning, Elle and I woke up very early to run (jog!) a 5K. My friend Tamiko encouraged me to sign up, and I couldn't come up with a good reason not to, so I did. Elle instantly said she wanted to join me. The guys slept in and we left for the run in College Station. We finished! I can't give you our time because we didn't start with the pack, but we all had fun. Elle actually finished about 5 minutes ahead of me, but she was there waiting for me at the finish line. She ran with Tamiko's friend, Eman. Can you believe all four of us forgot a camera??? It just goes to show me that my life doesn't have to run like clockwork to be able to take a little time for health and excerise. My training schedule was far from perfect. I had planned to run, Thursday, for example, but obviously that wasn't going to happen, being in the ER til 9pm.
Now we are just crossing fingers for Tuesday's counts. And, actually for the first time on Millennium we have to make sure Hans' counts bounce back high enough to start a new round. Yikes! I don't even know what the parameters are since we haven't had to watch for it yet. But, as of Friday, the Plts at 64, were probably questionable, and ANC of 1000 and HGB of 9 probably fine.
Thanks for checking up on us.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.