UGH. Went in for counts yesterday and got detained/or rather sent over to the ER for a low Potassium. The potassium can drop as we stress dose Hans for steroids. It was just a little bit of a mess because we had a late counts appointment and got the results about 5pm. They have no mechanism for taking care of us at that time of day other than to register us into the ER. I think they could streamline that system, but I rarely want to relive the drama to write the letter of complaint.
Ah well, they gave Hans an oral dose, noted that he looked beautiful on montiors, and rechecked his counts, and since his potassium came up by .1, we were allowed to go home. Only to return again this morning to make sure they are still looking good.
His counts were weird. His plts had dropped from Monday's 124 to 64, and his HGB had dropped from Monday's 12, to 9.3 But the ANC was up from 200 to 790??? I actually really thought Sunday and Monday would be his low point, so I'm a little bummed. We're not on ABT751 anymore! This Millennium stuff is harder on him. But, I hope and pray pray pray that it is going to wipe that disease out.
So - headed back in for counts. At least I have a good book on tape to listen to - between replays of Big Time Rush...
Kevin is in Oklahoma this week. I guess it really does take a village. I need to thank Jill, Shawn and Michelle for caring for Elle last night while we were detained in the ER.
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
5 comments:
Holy Cow! I am going to mandate count recovery and a peaceful weekend for the Weberling family.
In other news I had conversations yesterday about lanyards with the director of Mo Ranch, who wants to add EDL to the camp curriculum for all the campers this summer. This is a new "opportunity" with all sorts of logistics to figure out.
I also had a conversation with an early lanyard beader (this woman organized the only workshop that Erin actually taught) who wants to involve all the churches in her Episcopal diocese to make and show lanyards at their service forum next February. We're not sure how that will work either.
I'll write you some more on email, but you should take the lovely Hans and Honey down to the park this morning instead of reading email.
Vickie
Hoping things smooth out so you can all have a great weekend!
Love, hugs and prayers,
Aunt Holly and Uncle Michael
We're very greatful that you have such a wonderful 'village' to help you all out!!
Love,
G.Kathy & G.Dale xoxo
Love and prayers for Hans and the family. Sounds like this has been an aweful week, but so thankful to hear that Hans is ok. I can not even imagine how scary Tuesday must have been for you all. You ALL have amazing strenth.
Mia and I are starting to get out and about more and more. If you ever need a thing please just let us know. Even just lunch or a quick errand- we would love to stop by!
Love,
Sarah Nusbaum
Hang in there...your world-wide village is behind you every step of the way!
Wishing you a quiet weekend home...and may Kevin be home SOON!
Love and hugs,
Aunt Susy
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