About Me

My photo
Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Saturday, September 05, 2009

News for NB Families...

This conference is just being announced, so I wanted to post about it. It's our first Regional NB Conference for Families and Caregivers. I'm excited about it and proud of my friend Athena for her hard work and dedication. The Email below is from Pat Tallungan, president of the CNCF.

Hello everyone,

Not all of our families were able to attend the conference here in Chicago,
so CNCF is trying to reach as many families as possible and we have set up
our first regional conference. It will be held in Houston. It is a one
day seminar scheduled for Saturday, Oct. 17, 2009 at the Hilton Houston
North from 7:30 am to 5:00 pm.
Program speakers:
Dr. Heidi Russell, TXCCC
Dr. Chrystal Louis, TXCCC
Dr. Peter Zage, MD Anderson
Dr. Patrick Reynolds, Texas Tech Un.
Dr. Meghan Granger, Cook Children's

All families are welcome to attend. You can go to our website for more
information and to download a registration form. www.nbhope.org

We anticipate a successful regional conference and hope to spread across the
country doing similar meetings. It is our goal to make learning as easy as
possible and as convenient as possible.

Thank you and we hope to see you there. If you have any questions feel free
to email me or contact Athena Friday-Black at:

Pat Tallungan

In other news: I'll just way we're happy week 2 of school is over. I'd say 4 good days out of 5 again.

Elle and I are up to another soccer tournament this weekend in Katy again. So, we basically have to pack it up and say good bye to the guys for at least half of the weekend. This should be the second of two or three tournaments all year. I'm still getting used to it. It is a little intense! We've already got two girls on the DL from the first tournament, and we haven't even started regular season play yet - that starts the 12th. It's so dang hot still, the games are spread out, noon and 6pm, and so far away that Hans would never hang on the sidelines. Kevin and Hans have their work cut out for them at home, though. They've been rebuilding part of our back deck that got waterlogged. It's nice to finally be able to give our home some TLC. For soooo long there, all our TLC went straight to Hans and he needed it. We're incredibly happy that he's doing this well. I just hope and pray that good scans later this month will allow us to keep up this normal, lovely lifestyle!!!!



Anonymous said...

I is so great to hear all the news of your new daily life. Sounds just wonderful!
With love and prayers for 8 more decades of it!
G'ma Stephanie

Anonymous said...

So nice to hear all is well and low key!
I would conference, too, if I were closer!
Good luck, Ms. Elle! I don't know how you do this in the heat!
How's school???
Love and hugs all around!
Aunt Susy