So, Hans is just one of four NB kiddos I have heard is undergoing scans today. Will (MA) already got good news! Hans, Erin (TCH) and Sam (CA) are still waiting.
We actually may have to wait longer than our original thought of Tuesday. Gustav just may get in the way of clinic visits. Let's hope not though. I'm actually hoping that Gustav doesn't hit New Orleans even more though, that would just be too cruel...
Today's scans went okay. Hans had his MIBG and we were late. He couldn't pee for the longest time and finally went just before I was going to let them cath him. I am so praying for clear scans, that I don't even really have room in my brain nor my heart for the 'what if' scenario... Hans' blood counts checked out just fine for today. Good hemoglobin and recovering platelets. Hans and daddy go back tomorrow for a CT... while I get to lounge around the house and then go out to lunch with my girlfriends!
We had the best day yesterday! Hans started Kindergarten yesterday. I was really proud of him and just so pleased with everything in general. Hans' team up at Glen Loch is actually exceeding my expectations. His nurse, Mrs. Reedy is an answer to a prayer! Hans was wondering why he wasn't going back to school today - so daddy's giving two thumbs up to this whole school thing too, just because he's so into it.
Thanks to every one's well wishes for my birthday. I've actually had a really pleasant day - given that most of it was spent up at TCH. It was nicely broken up with a lunch date with Erin and her mom, Vickie, before she had her turn on the MIBG. The real bear of the day was waiting FIFTY minutes to pick up our car in valet... Ah well... Knowing that we had scans and counts today - I hadn't expected too much out of the day and I think that's what has made it so pleasant. We had a festive little family dinner at our nearest Mexican Restaurant - so there's no complaints here:) Praying for good scans for all of our dear ones - and not giving up on the dream of an eventual cure for this beast of relapsed Neuroblastoma...
Lara
ps thanks to alana for collecting elle off the bus today, and thanks to Monte and Carmen for the knock-out home-cooking meal this week:-) Thanks also to Matilda who offered up Mass at Saints Simon and Jude in Hans' name last night (again)...
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
6 comments:
Happy Birthday Lara! How fun that Hans is into going to school and how awesome that he's got such great care while there. Keeping you all in our prayers for clean results and no hurricane.
Love, Aunt Holly and Uncle Michael
Happy Birthday Lara! So happy that Hans got to go to school - he needs and deserves to be doing what a child his age should be doing! Enjoy your lunch with friends and have a nice weekend. Charon
You are such a secret keeper. I would have bought your ChickFilA if you would have let on that it was your birthday. Sorry about that valet thing. It seems like everytime TCH solves one bottleneck problem, another pops up.
Our drive home went pretty smoothly. We were both pretty exhausted by the evening. Erin opted out of soccer practice and went to bed and to sleep shortly after supper. I think I may have been the only person in America to fall asleep during Obama's acceptance speech (and I really wanted to hear it all). I guess that's why someone invented YouTube.
Post as soon as you know womething.
VB
Go Hans Go!
VB
erinbuenger.blogspot.com
Hi!
So pleased all is going well, and school is a big hit!
Many prayers are being said for all of the dear children...
Enjoy lunch out, Lara...again, HAPPY BIRTHDAY TO YOU!
Love and hugs,
Aunt Susy
So glad that Hans is getting to go to school. I know Elizabeth was happy to finally get to go and is having a great time in 1st grade now. They are always sad to miss school, but seem to be such troopers - focusing on what they can do!
We've been there on 6th - it does seem to take forever!
Hope you have a good holiday weekend!
Lara,
I tried to post a comment on your b-day but it didn't work!
Anyway I am glad your special day went well, and that you all had a chance to go out to dinner together and celebrate.
Continual prayers go out for all the NB kiddos and their families!
Love,
Mom
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