Hi,
We had a "quick" day at the clinic yesterday. Hans got tanked up on a rather large bag of platelets and we now have the green light to hop on the plane! We haven't been back home in two years - since before diagnosis. So, it is going to be really great to be home. Hans has been counting down the days and he woke up today noting that 'it's friday - we can hop on the plane.' We will go to Children's Hospital in Seattle for counts on Tuesday and Friday next week. We hope to have an office visit with Dr. Julie Park while we're up there as well. We may need to go back in for a transfusion on Monday, before we leave, but hopefully not.
Hans had fun passing out a print of a cute picture of himself to the doctors, nurses and staff up at TCH yesterday, and people were asking him to write his name on the back. He sometimes had two people lined up for his "autograph". We also picked up his PreK registration packet yesterday and he proudly wore one of his sister's first "Glen Loch Gators" t shirts.
Yesterday, though was another rough one up at the clinic. Our little sweet friend Patrick found out that his questionable spots are indeed relapsed NB. I also heard the terrbily sad news that little Blaine Brandon lost he battle with NB over the past weekend. He had a particularly smart tumor, and his treatments never got it fully under control. He was a sociable and spirited little boy, who turned six years old this month. It has been a really rough and horrible year for Neuroblastoma/Solid Tumors up at TCH. We've decided that the proceeds from the next bake sale will be memorial contributions in the name of each of the children we've lost this past year. It's absolutely astounding to me that we are now at five just since last Fall. Remembering Haleigh, Carlie, Chloe (Dx - Ewing's Sarcoma), Ryan and now Blaine. We'll never forget.
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
3 comments:
Autographs and registering for school! WHOO HOO!!
Plane-hopping is fun, and I know you will enjoy family, friends, and the pleasures only the NW can offer!
All of the dear children...I will remember them with love and prayers.
Love and hugs,
Aunt Susy
wow school registration, autographs and hopping on a plane - enjoy your trip you guys deserve a great trip home, surrounded by family friends and that familar home feeling
xoxox
Liz rob jemma and flash
Hi Weberling Family, it's Allison Kilway. My son, Travis and I are going to be your local Sparrow Club liasons. We are excited and proud that Hans will be a part of the Sparrow Clubs Family at The Woodlands High School. We will begin to introduce Hans to our Sparrow Clubs members tomorrow at the 9th grade orientation with a video being sent to me by Jeff Leeland. I would encourage anyone in The Woodlands area who would like to participate in our fundraiser for Hans to either come by the school during orientation Tuesday August 12 (8am-3pm) or Friday August 15 (9am-12pm) to purchase Dreamers Candles for $25 each as all proceeds will go to Hans; or contact me at Sparrows@YourHometown.com !
xxxooo, Miss Allison
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