Hi Everyone,
Just wanted to let you know that things are going okay inpatient this go-round.
Hans isn't having fever or any ill-effects from the chemo he has been getting. He got his Zometa transfusion to help rebuild his bone where the tumor had eaten away, and to help heal the fracture, and, I think, for pain. That was interesting because the whole time he was getting that transfusion late on Thursday night he was just pouring sweat like a fountain, but has complained of no pain.
Dr. Russell stopped by to check on us on yesterday and said that if we continue to have such a "boring" hospital stay that, should we do a Round 3 of this chemo, we could do it on an outpatient basis.
The plan is to get through this chemo and do a CT and an MIBG scan to see what is happening with the tumor before we decide how to proceed...
My mom is here and is helping me with a little list of special projects I have put together. I hope I'm not bossing her around too much but I love getting these things done. She's great! Elle and Hans are happy to have their Grandma Stephanie here. Yesterday she was able to fill Hans' very special request of Conversation Hearts and another Tom and Jerry movie. Hans' taste buds are changing again, he's living off of Cup O Noodles, conversation hearts, french fries and lemonade. He seems pretty content to play video games, watch Tom and Jerry Cartoons and hang out with us. He is also playing with his new favorite toys - power rangers - thanks to Grandma Kathy and Uncle Tommy for sending us some new ones! He's pretty lovey-dovey with us and tells us all the time how much he loves us. He is now almost completely bald. Yesterday he was hand-picking off remaining hairs so that they wouldn't fall off on his clothes and be itchy and scratchy... Kevin has been able to stay here with us some nights, and, in effect, shorten his drive into work. Somehow it's not the same, I'm sure, staying at the hospital and then going into work...He was up all Thursday night taking well calls, but now that this one is sorted out I don't think he has another one coming in for a while.
On Wednesday afternoon, Hans and his buds were able to meet up at the park for a quick, hot playdate. That was nice, it has been a while! Hans is making new friends with a pretty little red haired girl, Kira. It was so cute, when she showed up at the park with her mom, Vicki, Hans really perked up and said, "Mom, look who's here!"
Last night my mom and Elle and I went to a special event called Dream Night at the zoo, we got invited through TCH. It was pretty neat with free carousel rides, photos, airbrush tattoos and more! Elle got TWO tat's of a soccer ball with flames, she's getting amped up for camp! We saw another NB kid, John and his sweet family there.
We're happy to be up on the 9th floor to be near and available to Chloe, Joyce and family as they go through this most difficult time. We're also keeping little Ryan aka Batman in our prayers as he learns of ongoing progression of this awful disease. Colby got stable scans, and we're hoping Erin's new Treatment is doing the trick to keep progression at bay. My friend Kelly just shared the amazing news with me that her relapsed breast cancer is "almost all gone!" Wonderful...
I'll let you know when we make it home, either Monday or Tuesday.
Lots of Love,
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
4 comments:
Glad to hear of your "boring" hospital stay!!! Come home soon. We are craving some more Double Dave's!!!! Keep it up Hansie!!
Love, The Nolens
Blessings and prayers for Hans, Chloe, Ryan, Colby, Erin, and Kelly! May you be wrapped up in love and health.
Hugs and smooches,
Aunt Susy
Dear Family,
I just want to let you know that I think of you on a daily basis, and my prayers are with you for your precious Hans.
Sincerely,
Mrs. McGraw
(Elle's music teacher)
Hi you'all - went to the graduation party in Sultan on Saturday. Shelly is home and grought Chelsea with her. It is raining, raining, raining.
All is well in Seattle - and keep hoping and praying that all keeps well in Houston!!! love, pl
Post a Comment