Hi there, so once again it's been almost a week since we posted. I guess in this case no news is essentially good news. Hans is feeling pretty good. That's how it goes, these kids get to feeling really well and then it's time to hit them with more chemo. We had an office visit this morning and met with Dr. Russell:
-His Hemoglobin is up to 13.9, his platelets are at 81, and with an ANC of over 1000 he can safely be out in public again. His counts have recovered so that he won't need anymore transfusions.
-Dr. Russell said his platelets just need to be at 100 for him to get chemo. He has another visit on Thursday and he is expected to be admitted for his next round of chemo (Topotecan/Cytoxan), and he'll also get Zometa during this hospital stay - via IV infusion.
-We are all finished with Radiation! It's nice not to have to be down there daily. We actually finished up with that on Thursday last week.
-Hans' hair is really falling out now. He's got a shiny bald spot on the back of his head, but his hair up top is still pretty full. I was trying to get him a photo shoot scheduled for yesterday - but the girl couldn't do it until possibly tomorrow morning, but I'm afraid by then it'll be pretty clumpy... I think we might just wait until he has that smooth cue ball look again for portraits... It was pretty cute this morning, he was getting out of the car, and he had shed a good deal in the car seat, and he picked up about a handful of it and patted it back onto the top of his head. I think he's ready for his daddy to give him a haircut tonight.
-My mom comes in tomorrow for 10 days to get us all through this next round of topo/cytox. We're all looking forward to that!
-Honey is doing great as our dog. She's adorable and pretty amenable to training. I can't believe it! We have a track record of finding wild dogs that are resistant to training - I actually thought it was me. So, I'm very pleased with how things are going.
-Elle has only three more days as a 3rd grader! She's been having fun with Volley ball and will start off the summer with a soccer camp thru the Rice University Women's Team! I'm excited for this experience... She'll be right across the street from us too, as we'll be inpatient a couple of days of her camp.
Guess that's all for now.
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
4 comments:
We love you and say a prayer for you all everyday. You are an amazing family and a reminder to not take anything for granted.
Much love, The Seldens
With all that Hans is going through, he still can put a smile on all of our faces with his innocence! I can just picture him patting the hair back on top! Tell him not to worry about the hair - he is just going to get his summer look back!
Elle, have fun in soccer camp!
Love to you all, Grandma Kathy, Grandpa Dale XOXO
I'm thinking of you and good luck with inpatient...
I love the hair patting story.
He will be adorable in pictures with or without hair, that's just how he rolls...
Love ya,
Roxie
Hi, there!!!
Indeed, I did smile at visualizing Hans patting lost locks back in place! Your summer "doo" will soon be replaced with timely fall growth! Regardless, you are the most handsome of dudes!
Yeah, hooray for Elle, too! Such successful third grade year and fourth grade to look forward to in the fall!
Soccer camp will be great fun...do you play in the morning, or evening, to beat the summer heat?!
Glad to hear Grandma Stephanie will arrive soon!
Love and hugs,
Aunt Susy
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