Hans got his port

Hi -
Yesterday Hans finally got his port - it was officially yesterday, but just barely. He didn't get called down to the OR til 9:30 pm for his 4pm time slot. They took him back at 10:30, and called us to get him at midnight. We finally made it back to the room after 1 am! The little guy was such a trooper. They were giving him IV fluids with glucose and potassium, so I really think that took the edge off of his hunger. He was a great sport! He didn't get to eat or drink at all yesterday:( But, the other good news was that Kevin wrapped up in Oklahoma and made it back here to escort Hans to the OR! At the end of the day - I think we all just felt fortunate that they were able to actually get it done and that Hans handled the day so well. We felt honored by Dr. Nuchtern's commitment to Hans - he wouldn't let anyone else touch him. Dr. Nuchtern was flying out of town this morning at 5:30 am and we know he rode home from the hospital on his bicycle after midnight last night. I got the sense that things did not go smoothly with the case before Hans... But, I hope the little child is recovering well today.
So - with the very late start with the port we didn't start Chemo last night. Kevin and I realized that maybe it was just for the best. Hans is expected to be a little sore after surgery. They went ahead and did a bone marrow aspiration as well - so he is sore in both his hips and his chest. They should start Chemo this morning. As for Radiation - I still haven't heard from Methodist Hospital, where they do the radiation, so I'm predicting that'll be starting on Monday...
We shouldn't hear the bone marrow biopsy results til Monday or Tuesday, so we'll be praying for Negative. Dr. Russell said it doesn't matter for treatment, but it'd be nice to hear.
Elle is being well taken care of by my friend Anne, and having lots of fun with her friend Kira... Kevin is glad to be home. Hans is glad to have the IV out. I'm not sure if he understands that we'll be here 5 or 6 more days, but we're trying to explain to him that he needs to be here to get the "magic water" (chemo), so that it can eat up the boo boo in his arm. I borrowed that term from an incredibly proactive group of parents that has created a foundation for fast-tracking innovative NB research. Check it out at www.magicwater.org
By the way... We did hear last night that both Erin and Chloe aslo got the scary news of tumor progression and relapse. So many kiddos to pray for! Colby's scans are coming up next -so they better be good. you can check out his site, and order one of his mom/Tracy's cool shirts - just $10 - www.caringbridge.org/visit/colbyash