I saw on another NB girl's blog that they referred to the Topotecan/Cytoxan as the "topless cyclone". So - I guess we'll see what that's all about. So far he was getting fevers (better now) and the nurses were chasing his electrolytes - he was wasting potassium, but now I think that he's eating a little better, he's doing better. Since he was getting fevers for a couple of days - they have been running blood cultures. They're all coming back negative. Unfortunately, the bone marrow did not come back negative - there were tumor cells on the right hip sample (same side as the arm with pain). As Dr. Russell said, this doesn't change the treatment plan, but to me it makes it seem all the more serious.
Hans will start Radiation Treatment tomorrow, which should reduce his arm pain. He will go for 7 days of treatment and is such a big boy now that he'll be able to do it without sedation. It was hard for me to take Hans back to Radiation - we were never supposed to go back there!
This whole week I think the reality of this relapse is just sinking in deeper and deeper.
I do have people to thank! Michelle and Carmen are putting together a meals list for us for Tuesdays and Thursdays. Those are the main clinic days and we'll appreciate that very much! Anne, Eric and Kira did a great job of taking care of Elle this week - thanks. And Shirley kindly included Elle in Daniel's b-day plans Friday afternoon when other plans we had weren't working out. Thanks to Grandma Stephanie and Roxie for sending balloons, candy and toys to brighten room 916 - and we have been receiving many TCH postcards - so thanks for those too. Kerry - we loved the special delivery for Hans and his puppy! He can't wait to get back to Honey!
We're just sort of counting down until we can break out of here. Chemo has been getting started very late - so we might start tonight at 8, tomorrow at 6, and then we should be able to get the nulasta shot and be out the door by 4 or 5 on Tuesday???Lara
for a little bit of fun, we found this website - http://www.scholastic.com/captainunderpants/namechanger.htm
I guess you can call us Booger, Flunky, Crusty and Cheesball Chucklepants - check out the site and you can sign in the comments with your official captain underpants convereted silly name!
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
6 comments:
Hang in there Lara! Tell Hans I'm ready to see a new dancing video as soon as he is up to filming another one! If Carmen needs more volunteers to cook a meal, please let her know I'd love to help.
Love,
Charon
Hoping you can all go home soon. Lots of love, prayers and healing thoughts from the Pizzashorts family in Washington.
Cheeseball (Aunt Holly),
Pinky (Uncle Michael),
Snotty (Sadie, the dog) and Falafel (Tasha, the other dog)
Erin and I will try to stop by on Tuesday if we get a moment's break from clinic. I'm wearing my beautiful bracelet today. it gives me courage when I feel it on my wrist.
VB
erinbuenger.blogspot.com
HI guys. I hope that Hans is feeling better today and that you guys get to go home on Tue for some much needed home time. I remember how great it felt comming home after treatment to a nice quiet house. We will be in for scans on Thursday and Friday so maybe we will see yall on Thur. Hang in there please call if you need a shoulder to lean on or just need someone to vent with:) See yall soon
Tracy Ash
Only one more hospital day to go!
Hang in there Hans, Lara, Kevin and Elle.
I love you all,
Loopy Lizardtush
(aka Roxie)
I was surfing the internet for webering-and found hans-tell him we will pray for him and what an amazing kid-i bet he could teach us all lessons-angela webering lukavsky-our prayers are with ya.
Post a Comment