So, things aren't going quite as well on Accutane as we had hoped. On Monday, Hans complained of headaches. We realized that he had had some on Sunday, too. We called the on-call oncologists and they said to bring him right down to the TCH ER. We were surprised, but of course we did as we were told. There, they did a CT scan on Hans' head. Thank God, it was normal. The fear was a tumor, but I guess other problems are possible with Accutane like brain swelling or a Pseudo Tumor! His vision and neurological tests were fine. And, we were actually in and out of there pretty quickly. It just sort of wiped us all out. Luckily, Elle had been on a sleepover and our friend Wendy just kept her all day so that she didn't have to go through the whole ER ordeal along with us. That was nice.
So, for now the plan is to wait until tomorrow to make sure that the headaches are gone, and then try Accutane again on half of the dose he was getting. I hope this will work. We shall see... He actually didn't have headaches yesterday:)
I just learned that another little girl, Haleigh, that we know through TCH is having some painful symptoms related to her relapsed Neuroblastoma. Please consider including her in your prayers this week, along with some of the other kiddos fighting relapsed NB like Carlie, Colby, Ryan (a.k.a. Batman) and Erin...
Thanks, Love, Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
3 comments:
Prayers for all the little warriors. They all fight so hard in their battle for good health and are all so inspirational.
XOXO
Grandma and Grandpa
Sorry that Hans suffered from those headaches. Accutane is a tricky medicine and I am glad you were alert to his complaints (and that the ER wasn't that bad). I hope halfing the dose does the tick for you.
Thanks for the mention of the TCH relapse kids.
VB
erinbuenger.blogspot.com
Sweet thoughts and prayers for Hans and the brave little ones...each one is wrapped up in a blanket of love...
Hugs and love to all of you,
Aunt Susy
Post a Comment