Hans is still holding up "okay". His fever got a bit higher last night, it did hit 102.5, so the doctors are broadening the spectrum of anti-fungal preventative meds he's getting. He is also receiving broad-spectrum IV antibiotics. The name of the game is heading off infection now that his white counts will hover at 0 for several days. We just have to pray that the preventative meds do their trick and Hans can avoid battling a nasty infection! Thank you so much for keeping us in your thoughts and prayers through this difficult week.
Hans is getting platelets today. I just went to give him his Tylenol, a standard "pre-med" that he gets along with Benadryl when he gets blood products. Hans still has a bit of spunk, he shook his head vigorously no and said, "Just go work on your 'puter." It does hurt for him to swallow, so he'd do anything to avoid taking oral meds. Fortunately, we're still at the point where he can tolerate Tylenol.
Up here on the 8th floor, Hans' buddy Patrick continues to improve. Other new friends are starting BMT this week including Nathan (pictured with Hans in the newspaper), Ketti and Elizabeth. We are keeping them in our prayers too.
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
7 comments:
Oy... I can only imagine how un-fun the mucositis is and am vibing you lots and lots of good energy that the infections stay away and recovery comes sooner rather than later. Let me know if I can do or send anything that would bring a little joy, if even for a moment!
Love,
Erin
Tell him the best birthday present I could get this year is for him to keep getting better!
Hang it there, guys. We pray for you a lot, and hope things continue to get better. Hans is quite a trooper, as are the rest of you. Take care.
The Burgharts
We're out here reading every word, every day and marveling at how strong Hans is and how amazing your whole family support system is. We're sending lots of prayers and good thoughts in your direction. I hope it continues to go "as well as can be hoped!" and better... ;-)
Kim
Hello, Hansie!
Aunt Susy is doing a get well dance for you...if you use your imagination you can't help but giggle!
I do wish you well every moment of the day, and I can't wait to see you up and frisky!
Give Mommy, Daddy, and Ellie hugs for me!
And they will give you 3 X more!
Love you,
Aunt Susy
God bless you, Weberlings.
You are all part of an unfolding miracle, especially that little man who is fighting so hard.
What an inspiration you all are. If only there were some way we could share the burden. Wishing you peace and strength to get through this journey. Prayers everyday for you.
Love & angel hugs ~ Wendi in E'burg
Hi! Good to hear things are going as expected, I'm praying things will improve to better then expected! You are all so strong and so fortunate to have each other. You are an inspiration to all of us. Love, Cindy
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