Here is a picture of Hans and Petey, the big dog he got from His Grace Foundation upon admission to the Bone Marrow Transplant Unit.
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
Tuesday, April 24, 2007
Hans and Petey
Here is a picture of Hans and Petey, the big dog he got from His Grace Foundation upon admission to the Bone Marrow Transplant Unit.
His Grace Foundation Taking Care of Us on the 8th Floor
I wanted to let everyone know that we, along with the 14 other families here on the Bone Marrow Transplant Unit, are being well cared for by a special foundation called His Grace Foundation. This organization was founded after a little girl named Gracie Kiltz was here with her family. Her family was so touched by the support and aid they received from their friends and family that they’ve made a commitment to provide similar support to all families going through the difficulty of receiving a Bone Marrow Transplant. The Foundation is specific to Texas Children’s Hospital.
Among other things, His Grace provided us with an enormous welcoming basket filled with useful items during our stay here, they cater two brunches and one dinner for the families on the unit each month, they cater a meal on the day of transplant, they provide us with a parking pass that allows for in/out privileges (parking here at TCH is $10 per day), they give us a shopping list and shop for items we need up to $25/week, they also provide us with an 800 minute phone card each week. Additionally, trained volunteers are able to provide childcare in order for families to take a break or attend important family/sibling events. On top of all that, there is a massage therapist who volunteers his time to the unit on a weekly basis.
The Foundation has really impressed me with its committed volunteers. I wanted everyone to know it’s here in the event that you or your service group are considering a new place to share your “time, talent and treasure.” Or, perhaps you can get your company to sponsor you for their major fundraising event – the golf tournament. This year’s event just happened and they raised about 95K, you can always join ‘em next year. Hopefully Kevin will be out there!
You can find out more about His Grace at www.hisgracefoundation.org. The website is really worth checking out! It automatically pulls up a video filled with families going through BMT. One of the kids on the video is Carlie, our neighbor in Indian Springs who is also battling Neuroblastoma. Her dad is on the video, too.
His Grace Foundation has made our stay on the Bone Marrow Transplant Unit notably more comfortable and bearable. These volunteers are amazing!
Lara
PS We are here on the unit with children who have yet to find an acceptable Bone Marrow match. You can find out more about becoming a possible Bone Marrow Donor and saving a life at www.marrow.org, or by calling 1-800-MARROW-2! (I just read about that in His Grace Foundation website.)
Among other things, His Grace provided us with an enormous welcoming basket filled with useful items during our stay here, they cater two brunches and one dinner for the families on the unit each month, they cater a meal on the day of transplant, they provide us with a parking pass that allows for in/out privileges (parking here at TCH is $10 per day), they give us a shopping list and shop for items we need up to $25/week, they also provide us with an 800 minute phone card each week. Additionally, trained volunteers are able to provide childcare in order for families to take a break or attend important family/sibling events. On top of all that, there is a massage therapist who volunteers his time to the unit on a weekly basis.
The Foundation has really impressed me with its committed volunteers. I wanted everyone to know it’s here in the event that you or your service group are considering a new place to share your “time, talent and treasure.” Or, perhaps you can get your company to sponsor you for their major fundraising event – the golf tournament. This year’s event just happened and they raised about 95K, you can always join ‘em next year. Hopefully Kevin will be out there!
You can find out more about His Grace at www.hisgracefoundation.org. The website is really worth checking out! It automatically pulls up a video filled with families going through BMT. One of the kids on the video is Carlie, our neighbor in Indian Springs who is also battling Neuroblastoma. Her dad is on the video, too.
His Grace Foundation has made our stay on the Bone Marrow Transplant Unit notably more comfortable and bearable. These volunteers are amazing!
Lara
PS We are here on the unit with children who have yet to find an acceptable Bone Marrow match. You can find out more about becoming a possible Bone Marrow Donor and saving a life at www.marrow.org, or by calling 1-800-MARROW-2! (I just read about that in His Grace Foundation website.)
Monday, April 23, 2007
Chemo is Complete!
Hans has completed his 96 hour chemo drip. It was pretty exciting that they just took down the last of four 24-hour bags!
Hans is set to get his stem cells in two days, on Wednesday April 25th. He is still coping with all of this okay. He is feeling a little pukey, and is having trouble keeping things down. But for the most part he's not that interested in food, just taking sips of his drinks. They'll start him on the IV nutrition in a day or two.
He has had a bit of fever, but so far that hasn't even made it past 99.6, so he's doing good that way too! Way to go, Hansie!
Hans is set to get his stem cells in two days, on Wednesday April 25th. He is still coping with all of this okay. He is feeling a little pukey, and is having trouble keeping things down. But for the most part he's not that interested in food, just taking sips of his drinks. They'll start him on the IV nutrition in a day or two.
He has had a bit of fever, but so far that hasn't even made it past 99.6, so he's doing good that way too! Way to go, Hansie!
Friday, April 20, 2007
Hans in the news
Hans loved the visit with Race Driver and his fireproof suit! You can double click on the picture and it should get big enough to read. This is from the April 20th Houston Chronicle page B1.
So far, so good!
Hi all,
Just a quick note to say that we're almost 36 hours into the 96-hour continuous run of High Dose Chemo. So far so good. Hans is eating pepperoni pizza as we speak. His appetite has been as good as usual, if not better, and he's holding out just fine. The doctors are giving me looks of warning, as if to say, he'll be hurtin' soon enough. But we just figure each hour he continues to feel well is a bonus blessing.
I'll keep you posted!
That's all for now!
Lara
Just a quick note to say that we're almost 36 hours into the 96-hour continuous run of High Dose Chemo. So far so good. Hans is eating pepperoni pizza as we speak. His appetite has been as good as usual, if not better, and he's holding out just fine. The doctors are giving me looks of warning, as if to say, he'll be hurtin' soon enough. But we just figure each hour he continues to feel well is a bonus blessing.
I'll keep you posted!
That's all for now!
Lara
Thursday, April 19, 2007
Hans Yesterday
Here is a cute shot of Hans yesterday, while watching SpongeBob SquarePants. He's pointing at the TV saying, "Look mom, he's a girl." SpongeBob was dressing up like a French Maid...
Anyway, he's been relaxed and fairly healthy this past hospital stay. You can see his hair coming in. It'll all fall out again, but will grow back quickly.
Bernie, thanks for meeting up with us Yesterday, and brining the huge banner from Little Saints. (Each student at Hans' preschool did a piece of art and their names are all on it!) I think I can hang it up across the top of his windows. It's neat!
Hans with PBJ
This is Hans in the recovery area of radiation. As soon as he'd wake up he'd eat two PBJ's. Here he is with Dr. Framberg and Nurse Peggy. They were somewhat surprised that Hans wouldn't wake up cranky.
Hans and daddy at the fire
It was very chilly here Easter weekend. Kevin lit the fire on Saturday night and Hans had to give him a big hug of appreciation.
Elle at the art show
Last Thursday, I was able to sneak away from the hospital to go to Elle's school art show. Here she is with her Texas Longhorn!
Me and Hans on the train in Hermann Park
We went to the zoo on Good Friday. Hans was a little pooped out, but it turned out to be the perfect day for an outing. Good timing too, we didn't know he'd be getting admitted the following Monday. We rode the train through Hermann Park. We weren't the only ones with the idea of going to the zoo that day. We ran into the Pelletier's and the Jenks from The Woodlands!
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