Anything for Hans
As parents, we’d do anything for our children. Nine years ago, in 2006, we found out our precious and mischievous three-year-old was fighting a deadly childhood cancer, Stage IV High Risk
Neuroblastoma.
Kevin and I would have done anything to change
places with him and take on that battle ourselves
so he didn’t have to.
The choice was not ours to make, and we had to stand by and watch our beautiful
son wage a battle against one of modern medicine’s remaining enigmas.
We did everything we knew to do for him, circled the wagons, hit the books, and
gratefully channeled the love and support that poured out for him into the most
hopeful treatments we could find.
Neuroblastoma is a tricky cancer to treat, because it has often advanced to Stage IV
and metastasized before it is diagnosed. It can run a very different course in each
child. Hans’ Neuroblastoma would become a zombie; attacking our boy in a slow, relentless pursuit. And Hans would fight it like a tiny gladiator for six long years.
In that time frame, Hans received treatments across the country from four different children’s hospitals, he enrolled in multiple clinical trials, he never spent a day off
treatment since his diagnosis, and due to the harshness of his treatments and their
side effects, he never spent a month straight in a classroom.
It was moving and powerful to see Hans get through what he had to - to put everything
he had into fighting for his life. It was beautiful to see the childlike way he appreciated
the life that he fought so hard to live.
He just wanted to get his treatments done so he could be at home, with his loving
family and his attentive pets, with his toys and projects and comforts and favorite
games and movies and shows. He just wanted to swim and play and ride his bike.
He just wanted to be surrounded by his favorite foods and graze all day long. He
just wanted to love his family and his friends and animals and get just absolutely the
most of it that he could. It was amazing and inspiring to witness what he had to go
through to live that little boy’s life. The gift of Hans’ love was pure and unconditional.
It was a gift that will last a lifetime and beyond. It will last forever.
Since he was diagnosed we’d have done anything. If a cure were to be found at the
bottom of the ocean or the top of Mount Everest, we would have figured out how to
get there. Since we lost Hans we’d do anything to honor his life. We’ve joined forces
with other parents in a number of ways to bring awareness, community and education around this disease.
We’ve served on advisory councils, boards and committees to help give a voice for the child’s experience in hospitals and clinical trials. Together with Hans’ friends and family, and other children battling Neuroblastoma, we’ve helped raise hundreds of thousands
of dollars in donations for Neuroblastoma research through multiple fundraising efforts
over the past nine years.
When Sophia’s mom, Sandra, asked us if we would like to join Sophia’s Buddies and
put in a Team Hans for the CHLA Malibu Nautica Triathlon, the answer was always
Yes. Anything for Hans. This year, the triathlon will take place just one day before the
third anniversary of us losing our beloved boy on September 21, 2012. Kevin and I,
our sixteen year old daughter Elle, and our neighbor Don (whose son Keir beat
Leukemia at CHLA about 15 years ago) will swim, bike and run in Hans’ honor on
Sept. 20th. I’m going to the do the whole event (at my pace) and Don, Kevin and Elle
are going to do the Swim, Bike, Run relay. We wouldn’t be anywhere else. Funds
raised will go to CHLA pediatric cancer research so that in the future, other children
might not have to fight quite so hard.
Thank you so much for SWIMMING, BIKING and RUNNING
for pediatric cancer research!!
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2 comments:
Forever proud of Hans and all of you! XO
Kath n Dale
May you swim like fish, stay firmly on your bicycles, and run like the wind! I will be cheering you on from New Mexico!
Bunches of love and hugs,
Aunt Susy
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