About Me

My photo
Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Monday, December 09, 2013

Kick Off Meeting for CHLA Neuroblastoma Family Group

I would like to let people know that, together with the NB Team at CHLA and the CNCF,  I am starting up a grassroots CHLA Neuroblastoma Family Group.  The idea is for families to come together for information, support, community, and to join forces in fighting back by supporting one another in fundraising efforts for research, education and awareness.

Kick Off Meeting!  CHLA-NB Family Group

Neuroblastoma families (parents/caregivers, child, siblings) invited to attend
Please join us for our Kick-Off Meeting! 
Enjoy lunch and some social time
Round table discussion on the direction of this new group for families of children with Neuroblastoma

Thursday Dec 19th
Anderson Pavilion
Family Lounge 4M
Noon – 2pm

Lunch will be provided courtesy of the Children’s Neuroblastoma Cancer Foundation


Anonymous said...

That's so great, Lara! You will surely provide a great deal of comfort and support to those families dealing with this issue.
xo Shelley

Anonymous said...

Congrats! You have so much information that will help other families dealing with NB.
Kathy & Dale

Anonymous said...

La - good luck with the kick off on Thursday! This is a good direction for you to follow......your knowledge, passion and heartfelt ambition will help a lot of families deal with this. Hansie is looking down on you and saying, "yeah mom". pl

Anonymous said...

What a Great Idea. Your sweet soul, kind personality & hard earned knowledge is perfect to support & inform other Mama's & families going through this challenging & painful journey.
Love you,
cousin Jenny