About Me

My photo
Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Sunday, September 02, 2012

In and Out

I haven't posted because I keep waiting for news of what's going on!  Most of last week was spent making and then rescheduling plans.  Hans finally went in for an additional one-time dose of XRT to the left knee.  By the time Hans woke up from sedation, he had spiked a fever and needed both blood and platelets!  So, we got a room on 4West.  We had Elle with us as a special treat!  We got XRT, Blood, Platelets, even a little bit of Antibiotics and some Potassium!  All tanked up.  As always, thanks to all of you who can and do donate blood products - you are lifesavers.

This pic is actually from our admission Last Week where Hans built his third or fourth green lantern (Thanks G'ma S!) the hospital gift shop has a rather tiny Lego section, so sometimes we just build the same ones over and over...

Kevin and I each had an opportunity this admission to talk with Dr. Marachelian.  Now we just have to see which option we can actually get him set up with and go forth.  Looks like we are moving off Vorinostat already, due largely to PAIN that has really really increased since starting.  We have to infer that it's not helping very much.  Lucky, our Onc was able to pull together a laundry list of options. 

Hans is now home building, eating, and watching our favorite show!  We'll take it.  Thanks for checking up on us and for keeping Hans in your thoughts and prayers.


Anonymous said...

WOW, Hans...you are quite the Lego engineer!!!! I can tell by your delightful smile that you mastered the task with ease and joy!

Glad you are once again snug at home with Mom, Dad, and that great sister of your, Elle! Oh, and let's not forget sweet Honey, Orange, and Black!

I just returned from my morning walk where I had encountered one of the twin sets of fawns on my mesa hillside! They are growing daily, but still are well camouflaged by their spots! Autumn is in the morning air; so, soon winter coats will cause the spots to diminish!

Thinking of you throughout my days and nights...with BIG love, hugs, AND smooches!

Aunt Susy

Anonymous said...

What a great picture, legos and snacks. Looks like a well loved boy. Thanks for the update. You're family is in my thoughts are prayers always!

rherbert said...

I check in on Hans' page each day and always have him on my mind and in my heart. I am happy to see him smiling- despite all of the pain he has been dealing with. I pray that the next course of therapy knocks NB out of his body, a body that so deserves a break.

Anonymous said...

Sending best wishes from Victoria BC Canada. You are often in my thoughts and prayers. I hope your laundry list of options has the one thing to knock back the NB.

Anonymous said...

Glad to hear you've go a new list of options and very glad you're all home again! Hope you all have a very restful Labor Day :)
Love, hugs and prayers,
Aunt Holly and Uncle Michael

Anonymous said...

I am glad you are home, I hope that Hans is pain free! He really is a LEGO maniac. I hope your week is peaceful. HUGS. Cindy

Anonymous said...

Our 3year old was diagnosed in March and things had been going well until his cancer relapsed before we made it to stem cell. So we head to CHLA this week to hopefully begin a clinical trial. Sorry your fight has been so long. Hans sounds like an amazing kid. Fight on! Much love and prayers your way from Santa Maria

Anonymous said...

inusge 19As always wishing you God's grace & the white light of the Holy Spirit to
surround you all and keep you in His peace. Love always ~ Wendi from the Burg.

Anonymous said...

ps, if he's eating that's a big plus, right?? hugs143 ne