About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Thursday, August 16, 2012

Yesterday we went in to see Dr. Marachelian. Hans has been having some trouble urinating. It is just hard for him and it isn't coming easily. It could be a couple different things. One thing we were obviously worried about was NB. Luckily, a CT yesterday revealed that it's not NB. I guess in a small number of kids urinary retention comes along with persistent use of certain pain meds. We tweaked his meds regimen a little bit, but it looks like this is just a new problem we may have to deal with for the foreseeable future. We are supposed to keep track of his ins and outs and watch for fever, which could be a sign of a bladder infection.

 Hans' legs were feeling better, but now they are back to feeling worse. This is a scary time for us. A lot of you are asking what we need. We honestly don't know what we need right now! Right now we are just regrouping as a little family of four and trying to get a handle on an ever-changing situation. I feel like I'm balancing on a slippery log.

Kev was able to take all last week off. He was able to bring Hans in to radiation twice and get started on his next home project - baseboards! This week he is back at work. But, we are fortunate that he literally works one stop light from home. He stops by for lunch and bonus breaks to check on Hans. Our house is in the middle of two of the company's office buildimgs, so sometimes he pops in between meetings. It is a pleasant change from his 42 mile commute in Houston. We wouldn't see Kev until 7:30 at night some days... Just thought I'd throw in a little good news. I'm not sure if I've ever mentioned that it's nice to have daddy around sooo much here in Bakersfield!


Anonymous said...

Oh, it is WONDERFUL to know that Kevin/"Daddy" can stop by frequently, as well as be home in a flash!

Amidst the uncertainties please know that you are surrounded in love and best wishes!

May all Hans' systems return to "GO!" and pain be a stranger!

Sending BIG love and hugs,
Aunt Susy

The Alexander's said...

Thinking of you guys always.

Anonymous said...

Praying that all turns around quickly for Hans. It's great that Kev can get home often to check in...I know Hans likes that!
Love, hugs and prayers,
Aunt Holly and Uncle Michael

Kate said...

Just thinking of your little guy and pray things make a big turn for the better very soon.

Anonymous said...

Having daddy's around is a wonderful thing. Wish I could be hugging you all right now. I love you all so much. Forever and always praying.
Auntie Anna

Anonymous said...

We are praying for Hans and your entire family. Praying for healing, hope, and peace. We love you guys and miss seeing you around. It is wonderful that Kevin works so close to home. It is such a blessing.

Love & Prayers Always,
Theresa Williams

Anonymous said...

I am heading to Seattle tonight late. so I will pass you too late to visit but will text on my return trip & maybe we can get together. It will be the 1st weekend of September :)
Lots of hugs & Love your way <3
Love, Jenny

Anonymous said...

Dear Hans you are such a strong and inspiring you man and we are praying for you and hoping that the pain will soon be gone and you will beat this beast again. We know you will!!!
Lots of hope and many smiles from BC Canada! The Palethorpe Family

Anonymous said...

I'm praying and asking god and the universe to please help Hans get through these treatments and that they work! I love you guys.

Kate said...

Just checking in on sweet Hans. Hoping he is hanging in there. Much love and many prayers from Florida.

Anonymous said...

I don't know what to say other than let folks try to help you. As you know doing nothing is the hardest thing for anyone. People will give you help you didn't even know you needed, trust them, let them.

The Burgharts said...

Lots of prayers and good vibes your way. Keep fighting the good fight!

The Burgharts