Yesterday we went in to see Dr. Marachelian. Hans has been having some trouble urinating. It is just hard for him and it isn't coming easily. It could be a couple different things. One thing we were obviously worried about was NB. Luckily, a CT yesterday revealed that it's not NB. I guess in a small number of kids urinary retention comes along with persistent use of certain pain meds. We tweaked his meds regimen a little bit, but it looks like this is just a new problem we may have to deal with for the foreseeable future. We are supposed to keep track of his ins and outs and watch for fever, which could be a sign of a bladder infection.
Hans' legs were feeling better, but now they are back to feeling worse. This is a scary time for us. A lot of you are asking what we need. We honestly don't know what we need right now! Right now we are just regrouping as a little family of four and trying to get a handle on an ever-changing situation. I feel like I'm balancing on a slippery log.
Kev was able to take all last week off. He was able to bring Hans in to radiation twice and get started on his next home project - baseboards! This week he is back at work. But, we are fortunate that he literally works one stop light from home. He stops by for lunch and bonus breaks to check on Hans. Our house is in the middle of two of the company's office buildimgs, so sometimes he pops in between meetings. It is a pleasant change from his 42 mile commute in Houston. We wouldn't see Kev until 7:30 at night some days... Just thought I'd throw in a little good news. I'm not sure if I've ever mentioned that it's nice to have daddy around sooo much here in Bakersfield!
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.