Oh boy, so here we are back in it already! Hans was having neck pain and swelling, and long story short, he is being fitted in for emergent radiation to his neck. The lymph nodes at his right neck have swollen disturbingly and significantly. I am going to be brief here because I’m standing at a gurney waiting for Hans’ XRT simulation and CT.
We are on it! The team is on it. We are relieved that they are taking excellent care of our special boy. Every boy is special, but this one is our special boy. There is nothing like the love that comes out of that little body and heart of his. There is nothing like watching your little son with his peaceful determination to go about the business of fighting his tumor. The good news is that the NECK is the only area of growth. Elsewhere the CT scan showed “Near Complete Response”! This boy is quite a special little puzzle. His tumor is such a zombie!
The likely plan: Platelets today, simulation and CT today – With Sedation – the position he has to hold is just to difficult to do awake, even for Hans!
-8 days of XRT with sedation to the right neck at a rather high dose.
-Next weeks' scans are pushed back to allow for this therapy.
These are the current prayers of my heart: Hans will find the next perfect therapy for him in just a matter of weeks that will provide us with smooth sailing and quality of life. Counts will come up, and the tumor will leave us alone!
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.