About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Wednesday, June 13, 2012

3 more weeks of Xrt

It has been a few days since I posted, and I didn't want you to worry. Hans is doing well on our Xrt schedule. We have LONG hours but Hans doesn't mind, so long as we can be HOME at the end of the day. This whole week, there have been a couple of things making each day longer than it might have been, but we are shooting for doing many of our days in a 9 - 5 routine.

 News: Hans' pain is still a ZERO! Hooray. We are beyond thrilled. We have Hans on just a third of the dose of his one pain med, and we will soon be discussing cutting back on his other oral pain med. This is fantastic news. Dr. Wong is going to do a quick CT of the spine next week so we can see where we are at. He said that we might have some wiggle room to increase the number of days if we need to.

 I must THANK Gramma Kathy and Aunt Debbie. They were here for the whirlwind of days! Debbie found Hans' dream of Skylanders characters! It was a shopping feat to find 5 of the 6 on his list that we've been shopping for since Christmas. Debbie also worked like the next Design Star and helped us decorate our mantle area. Decorating is an underdeveloped skill of mine, so I can use a little assistance. Our new place is bigger, and we've had a lot of projects, so I've been sort of stymied. It turned out sooo pretty! Kathy spoiled Elle with lots of shopping and some good QT with both of the kids.

 The Grammas can't get enough Hans/Elle time. My mom will be coming back in 2 weeks, and Gramma Kathy will be back down in a month.

Thanks for checking up on us and for helping us keep our eyes on the prize...the 18th miracle of Hans!


Anonymous said...

I'm so glad he is pain free still! I'm praying for that little lego maniac to respond to this treatment. Is there still a wish list to check out for him?

Kate! said...

That 18th miracle is around the corner! Keep trucking Hans, you are doing so great!

Anonymous said...

Oh, HOORAY for no pain and plans progressing smoothly!

YES...Grandma Kathy, Grandma Stephanie, and Aunt Debbie are delightful miracle workers!


Love and hugs,
Aunt Susy

Holly said...

So happy to hear Hans is pain free...may it continue forever!
Aunt Debbie rocks when it comes to decorating...a true Design Star. Now she gets to come over and help me :)
Glad both of the Grandmas can be there so much...good to be spoiled by Grandmas!
Love, hugs and lots of prayers
Aunt Holly and Uncle Michael

Anonymous said...

Checking in & Sending Love & We too hope that Hans continues to be pain free! What a relief that must be for all of you. Auntie Shelly always askes me to pop in & say Hi for her as well, she is sending prayers & always thinking of you all.
I hope we will get to see you soon. Brandi will be in LA week after next for a class, maybe we can finally meet up?!?!
Big Hugs, Cousin Jenny, Jill & Auntie Shelly