It has been a few days since I posted, and I didn't want you to worry. Hans is doing well on our Xrt schedule. We have LONG hours but Hans doesn't mind, so long as we can be HOME at the end of the day. This whole week, there have been a couple of things making each day longer than it might have been, but we are shooting for doing many of our days in a 9 - 5 routine.
News: Hans' pain is still a ZERO! Hooray. We are beyond thrilled. We have Hans on just a third of the dose of his one pain med, and we will soon be discussing cutting back on his other oral pain med. This is fantastic news.
Dr. Wong is going to do a quick CT of the spine next week so we can see where we are at. He said that we might have some wiggle room to increase the number of days if we need to.
I must THANK Gramma Kathy and Aunt Debbie. They were here for the whirlwind of days! Debbie found Hans' dream of Skylanders characters! It was a shopping feat to find 5 of the 6 on his list that we've been shopping for since Christmas. Debbie also worked like the next Design Star and helped us decorate our mantle area. Decorating is an underdeveloped skill of mine, so I can use a little assistance. Our new place is bigger, and we've had a lot of projects, so I've been sort of stymied. It turned out sooo pretty! Kathy spoiled Elle with lots of shopping and some good QT with both of the kids.
The Grammas can't get enough Hans/Elle time. My mom will be coming back in 2 weeks, and Gramma Kathy will be back down in a month.
Thanks for checking up on us and for helping us keep our eyes on the prize...the 18th miracle of Hans!
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.