About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Monday, May 07, 2012

We hope to be able to figure some things out this week.  Wednesday might just be a big day for us. Not only will Hans see the Dermatologist, but he will also see the Oncologist and hopefully get some of our questions answered about Immunotherapy/Antibodies....

In the meantime, we are just trying our best to live around the pain.  We had a pretty packed full weekend. My neighbor Larisa came over and helped me get pictures up on the wall!  Fun. (I think I'm overly proud of myself for getting these types of things done.)   We are STILL moving in! Kev's done with the hardwood flooring in all but a a couple of small closets.  Now we are focusing on storage and needed furniture, etc...  We still need to tile the kitchen and  hearth, and do all the baseboard and transition pieces for the floor.  Huge project!  We are finally starting to appreciate this crazy house a little bit as we are seeing the light at the end of our tunnel on some of our projects. Kevin made it back from his boys trip to Indio - those guys did 72 rounds in 2 days of golfing. 

Anyway, we just proceeded with "regular" life and Hans was able to pop in and out of activities as he was able.  We had a fun weekend of bowling, a campout in the back yard with Elle's friends, grilling of course, roasting marshmallows, making s'mores, swimming, playing Super Mario Bros on the Wii, snuggling up for two movies - Chipwrecked and We Bought a Zoo (thanks Aunt Holly, it was really sweet!).  Hans loved those movies, but not quite as much as he recently LOVED watching Jack and Jill.  We all enjoy watching it just to watch Hans watch it.  It's awesome. 

Elle's pain eased away as soon as she hit Day 4, thank goodness.  She is just trying to figure out how and what to eat. Hans' pain has remained between a 4 and a 6 since we went into urgent care last Wednesday.  We just give him three half tabs of oxycodone over the course of the day and it seems to hold him over.  The crazy thing is that this pain seems to roam.  Sometimes it's in his low back, sometimes it's up in his right shoulder.  I am not sure what that means?

  

1 comment:

Anonymous said...

Wow, the Weberlings are on the GO!

It's good to know that Elle is finding relief as the braces go to work!

May scheduled appointments shed light upon Hans' roving pain...and that pesty wart!

A good movie is hard to beat...a delightful mind vacation!

Hang in there!

Love and hugs,
Aunt Susy