About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Tuesday, May 15, 2012

Round 1 Day 2

Today went better for Hans.  Thanks everyone for thinking of him today and sending your thoughts and prayers his way.

I wanted to let you know that he did a little better.  I think it helped to be on a good dose of morphine.  Hans started the Ch 14.18 at the 5 ml/hr rate and it was quickly upped to 10ml/hr.  He tolerated the faster rate for over 6 hours!  We had to slow it down at about 7pm when he started to get rashy cheeks.  It should run til about 1 am, and then they'll probably give Lasix to try to draw off some of the fluid he is retaining. (They did this last night too.)

Much better day today.  We shall see what tomorrow brings.  Thanks everyone, for your kindnesses towards our family!

6 comments:

Anonymous said...

Thank you for the update amidst caring for dear Hans.

I am so pleased that the demands of this protocol are less stressful this morning. May this trend continue!

So pleased Grandma Stephanie is right there, too!

Love and hugs,
Aunt Susy

Anonymous said...

Sending love and prayers your way this week--glad day 2 was better. Hope you and Hans hang in there and day three is as easy or better than day 2.
love, Sarah

Shelley Verkist said...

So happy that things improved for Hans! Praying they continue improving!!

Anonymous said...

Lots of prayers that Hans has more good days!
Love, hugs and prayers to all of you,
Aunt Holly and Uncle Michael

Anonymous said...

Please see the Wall Street Journal article about a new drug for children with NB and mutations in the ALK gene. Very promising. Hans was the first person I thought of after reading the article. Pardons if you were already aware of this. God bless you,

SAOP parent

.......................................Hans Weberling said...

Hi, oh yeah, we have seen some of the good coverage on that drug! We were optimistic, but Hans' tumor doesn't have the mutation. Researchers will keep at it and I hope one day they'll be able to identify many such markers for smart therapies!