So we have some pretty rough news.
Hans' abdominal pain was not getting any better, he even pooped three times for us!
Kevin took him into the CHLA ER yesterday morning. Crazily, Elle and I took the opportunity to drive north to Santa Cruz for
our friend Megan's baby shower.
Kev and Hans went through the ER and got admitted last night. They did an xray that eventually showed "something" right where he has been hurting. They ordered a STAT CT. The CT revealed a new soft tissue lesion between Hans' left kidney and his spine. This tumor was not there in the scan the week of April 18th. The scan also revealed a clump of small lesions at the right neck/lymph nodes.
Elle and I made it back to LA shortly after Kevin got this news.
We are likely to remain inpatient for now on pain control. Hans is getting regular IV morphine as well as oral oxycodone.
He is not feeling well, and he is still not eating or drinking much at all.
We are hoping they will get him into an MIBG scan early this week to see if there is anything else going on.
We hope to have a game plan soon. Not sure what it will entail at this point.
We had those five glorious days last week, from our discharge Friday, to the start up of this new pain on Wednesday.
We thank you for rallying together behind us once again to help push us through this next hurdle.
We thank you for our thoughts and prayers for this precious boy of ours!
18 comments:
Wow, Lara. I'm praying for Hans as usual, and very sorry to hear of this setback. I hope these new lesions respond quickly to therapy and he is back to "glorious days" in record time! I know Michelle keeps you well supplied, but please let me know if there are any treats from Texas that might speed his recovery. He's a remarkable boy!
Heartbreak! Our prayers are in overload for Hans.
Praying, Weberlings! Praying hard!
Northwest Hans fan
Thinking of your family, and lifting all of you up in prayer!
Oh, Lara. I'm so sorry. I was really hoping the stomach pain and lymph node was a virus.
I know Araz will have a plan for you soon. Who is the oncologist on service this week? I know Dr. Finley was on last week b/c I saw him last Saturday when Tyler was getting his MRI.
Please let me know if you need ANYTHING. I'm praying for a quick action plan that returns Hans to NED soon.
With love always,
karen borges
cb: tylerborges
I am so sorry to hear this news. We are kicking our prayers into high gear for Hans.
Love you all so much.
Sunny
Hugs.
Lots of prayers that Hans gets a great plan quickly and pain free again very soon!
Love, hugs and prayers,
Aunt Holly and Uncle Michael
May a new plan swiftly relieve pain and quickly restore Hans' appetite!
Praying with BIG love and sending warm bear hugs...
Aunt Susy
Oh, Lara, I'm so sorry. Prayers and prayers for a quick plan of action and relief from pain for Hans. Thanks for keeping us posted.
love, Sarah
Hi, Laura~
I have sent you a message at your hotmail account. Hope! love you and all the family in this crazy battle.
Wendi from E'burg
Always praying. He is remarkable.
-Becca Talley & family
I have been following Hans for many years now since my son Jacob started his battle with NB. I am sending positive vibes to Hans for the pain to stop and for things to resolve themselves. My thoughts are with you, Lara, to stay strong.
Lara and Kevin- I am so sorry to hear of this temporary setback for Hans!!! I have been witness to his amazing strength and your love that he will once again beat the beast back into remission. Praying for a quick plan and an even quicker return to NED!!!!! XOXO Shari
Lots and lots of prayers are headed your way!!! He's an amazingly strong little guy and so is his family...there are no limits to miracles! Hugs to all of you
The Kjorsvik family
Ellensburg, WA
We love you guys
The Seldens
I hate this! Hope the new plan develops quickly and works.
That is a heart-stopping pic of Hans - admittedly a gorgeous one. It brought back memories of Elizabeth drugged out on 8th. Then I read the blog post and realized that he is indeed on morphine. Prayers and hugs for you all.
I've wanted to write something all day and I seriously don't know what to say. We are all praying for a miracle and I can't think of a more deserving family.
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