I meant to post yesterday, but I fell asleep. Yesterday was really more of the same! Hans seems to be handling the Antibodies well! The docs yesterday told us that subsequent rounds tend to mimic the first. So, he might just be able to handle it all well. What a relief! I am now asking myself if I was psyching myself out and making it out to be worse than it is. But, I don't think so. Some kids don't tolerate it well and have issues with blood pressure and heart rate that can even land them in the ICU:( On Monday, one of the Fellows we know well here pulled me out into the hall and tried to prepare me for the worst. He said, I want you to be prepared. I don't want to sugar coat this. This therapy is rough. Kids can get into trouble with it... Pain, fever, blood pressure and heart rate issues, allergic reactions, etc. UGH... I feel better to now have Round 1 under our belt.
We are now getting our 2-hour GMCSF infusion and we should get the IV removed and get discharged in a few hours. Kevin and Elle came to join us last night. They came bearing gifts from our friends the Toth's! Thanks, guys!!!
The guys will return home tonight, and us girls are gonna stay in LA since we have to get my mom to LAX in the AM. I think we will go have some fun in Santa Monica. I like to go catch a couple of the street performers. Why not?? Hans and Kev will be happy to have a guys night in. Pizza, spaghetti tacos and some good snuggles with Honey, Black, Orange and Cotton.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.