The news is Hans' counts are okay - still a very low WBC and no ANC. This means home time and outdoor time for Hans, which is right up his alley. He is a little homebody! We had a bit of a scare yesterday. Hans' Potassium had been coming back LOW and he'd had some diarrhea and even a couple of headaches:( Yesterday he was getting into worse shape. He puked a little bit. I was worried that he was possibly getting dehydrated - he just didn't look right. With his adrenal insufficiency and his inability to keep his meds down, we took him into the ER. It was a long night, but he wound up completely surprising us and bouncing back. His Potassium had somehow completeley leveled out. It had been 2.9 Tuesday, 3.0 Thursday (low normal is around 3.5) but then it bounced UP to 3.9 by Friday night in the ER!!!??? I'll never figure that one out, but we are all extremeley pleased to be together at home this weekend rather than inpatient!!!
HGB has stayed up there at 11, and platelets were 95 Thurs, but dropped down to 54 Friday. The MIBG is still hitting him, and the stem cells have yet to kick in.
His appetite is starting to come back. Hans had lost as much as 5 pounds. Kevin and he went grill shopping the other day. Now the two guys can actually tandem grill! It's a little crazy, I know - but Hans is extremely careful! Not once, but twice last week Hans helped me out in the kitchen. He took over turkey burgers one night and chicken sausages the next. He and Kevin are grilling up marinated chicken hindquarters from the carniceria nearly every day, which seems to be Hans' staple food these days.
Dr. Marachelian is working on our next step. I'm going to wait and hold off until I hear if she's got FDA approval before I share what she's trying to do, I just don't want to jinx anything.
MORE love has been pouring in! Thanks for the cards that DID get rerouted from the hospital: aunties PL and Susy, thanks McC's, thanks Chaska, MN, and Thanks Grandpa Oscar - Hans will have fun Transformer Shopping!!! I think he's pretty much all toy'd up until maybe his 9th birthday, I'm sure the Easter Bunny will hop by with something cool. Thanks again!!!
That's the quick weekend update.
3 comments:
I think a cook-off between Hans, Dad, Uncle Quinn and Grandpa Dale is in order for the next visit!!
Glad ER didn't turn into an extended stay. Prayers that counts start climbing and Hans is back in class this Thursday!
Our weather has warmed up to 50's. Got to ride the horses and going roping tomorrow.
Love, G.Kathy & G.Dale xoxo
Oh, the ups and downs of life!! So pleased Hans is at home and feeling much better!
Hans looks like a well-seasoned grill master...time for his own network show????!!!!
I notice that Grandma Kathy and Uncle Dale have had nice riding weather! New Mexico has also had a few spring-like days; so, I too was able to ride my new equine friend, Gypsy! I am fortunate that our music teacher enjoys sharing this special horse...with me!
Wishing you great times and love!
Aunt Susy
The Grillmaster looks right at home in front of that grill...I love it!
Hope counts come up fast so Hans can get back to class!
Love, hugs and prayers,
Aunt Holly and Uncle Michael
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