The Post MIBG Treatment scan looked fine. I was actually surprised that the report was peppered with the term"subtle" uptake to the skull, one vertebrae, the area in the hip and that small node behind the heart. There were no spots that we didn't know about (Thank God)! Today Hans and I drove down to LA for a follow up appointment with Dr. Marachelian who is now back from India:)
What's next??? We get to hang out at home! This treatment is slower acting and longer lasting. Our docs will confer and decide about stem cells. Then we should re-scan in about 5 weeks or so. This next scan will give us the results and tell us whether the therapy worked. We have a month! We get to get a little bit of a life. We will then have to decide upon the new therapy... We might possibly do ANOTHER MIBG therapy, antibodies (if the NANT trial gets its funding...), or "something else". There are still a lot of options. I guess right now we are mulling over when/if to get stem cells, and whether or not to do a second, or third, rather, MIBG therapy.
We all feel a little bit like zombies after all the traveling, so we are hoping not to do too much this weekend. A lotta laundry, tho, that's for sure!
Thanks for checking up on us. Perhaps I'll plan to post along with Hans' lab results. He is to have labs drawn locally on Mondays and Thursdays. Sometimes it takes them a day to get back to me, though. His platelets actually continued to climb to 101, and just today began dropping at 78. His HGB is fine and his ANC just dropped to 1000 from 2000 two days ago.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.