Hans measured 4.5 today. We now have three of us in a tiny little ante room. We are rotating. Last night Kev slept here and my mom and I went back to the Family House. Yesterday Roxie and I got away to walk part of the golden gate bridge. Today my mom and I we to Fishermans Wharf for clam chowder in a sourdough breadbowl. Kevin's taking a windy/chilly bike ride. Roxie went back to Santa Cruz, my mom flies home tomorrow.
As for Hans, he is doing okay. He worked his way through care packages from grandma kathy, aunt holly/cousin KK and gang, and then everything me, my mom and roxie brought by yesterday. Kev brought him another gigantic star wars lego set so he is pretty much fine. The foley comes out tomorrow I think. Hans can be released to a hotel or the family house only if he measures 2.0 or lower. We need to stick around SF until Tuesday afternoon for another MIBG scan. I asked the radiation team if they could come and do a second reading in the afternoon if the morning reading is close. They said they would:) Basically, Hans is fine and Kev and I are going cuckoo!! That's better than the other way around.
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
2 comments:
Glad that Hans is doing fine and you get to take a few breaks even though it's got to be hard to wait for him to be released!
Lots of hugs and prayers,
Aunt Holly and Uncle Michael
Delighted to hear Hans is progressing and holding his own and passing the time with Legos and fun stuff...and that sleep, walks, clam chowder, and sourdough bread are assisting his family and friends maintain his calmness as the rad counts drop to an acceptable release level!
Waiting seems to be the game, and it is tough one to play...you have done so extraordinarily well!
Love and hugs sail your way...
Aunt Susy
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