We found out today that scans are pushed back another week. I'm not really sure why... but I'm totally fine with it. I know that Dr. Marachelian had originally wanted them next week...
Hans has dangerously low platelets <5, ANC is Great and HGB is almost 10. We are holding off on a transfusion right now due to the reactions he has had with the last two transfusions.
He is looking pretty good. Good enough that we thought we could get away with stepping out to Kevin's company Christmas party. It was actually totally fun and we are loving this company! It worked out really well, the party was at a hotel here in town and we just set Hans and Elle up in the room and checked on them a couple times as needed. It was fun! And now we get to enjoy more 8 more days at home (fingers crossed).
We'll check labs on Thursday and again Monday. THEN we go in for scans on 12/13 and 12/14. He has had a few random pains...one headache and one little back pain.
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
7 comments:
Great picture! Glad everyone had a good time.
Love,
G.Kathy xoxo
Glad you guys enjoyed yourself. Nice picture!
Love, Bren
You and Elle look like sisters!!!!
What a nice picture of you two and so great you get another week at home!
Much love to you all,
Charon
sounds like you had some much deserved fun...and I'm sure the kids enjoyed themselves, too!
Yay for staying at home :)
Love, Aunt Holly and Uncle Michael
I am SO glad you could take in a bit of a party. This is a great pic of you and Kevin, and it makes my heart sing. You look happy. I can guess Elle and Hans were too, hangin' in the hotel room and ordering room service. :)
Mucho love
Erin
Happy photo of two great individuals and a dynamic duo!!! So pleased you had a bit of time for YOU!
Good to know you are still at home, and sending wishes for improved counts and continued days at home to enjoy family pleasures!
Love and hugs,
Aunt Susy
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