Wanted to share some more good news. MRI looked good. There are maybe some spots that look like treated disease, but nothing of any concern at all! Hallelujah!
ALso, the doc had a chance to sit with the Radiologist and review past and present MIBG scans and has a new read on the MIBG. "His questionable lesions are not at all impressive on review and wondering if they are true." On that note, our rough plan is to shoot for MIBG therapy in January (if an MIBG center believes he would be a good candidate). ICE is back on the table as the bridge to get us to MIBG. So is another chemo combo of Doxo and one other agent. Our plan is to have a good busy regular weekend here, and check in Monday AM to see what they shall do with us. If we do ICE we could be home Thursday morning. The other chemo combo would put us home Christmas Eve... We may even add a round of Zometa... ZICE? ICEZ?
We are totally encouraged and excited that this is prime time to do a second MIBG treatment! Hans' bony disease responded immediately and completely to this therapy back in 2008, and we are optimistic about the opportunity to do it again. Not to mention, thankful that we have stem cells to use as a rescue from the MIBG therapy if needed!
Also, I have to share once again that I am truly so pleased with Dr. Marachelian, she is an angel to me! She called us from her home and spoke with us for an hour about our options at 7 o'clock last night.
Thanks for checking up on us:)
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
5 comments:
Good news, indeed! Glad you have some plans and a wonderful doctor working with you.
Love, hugs and prayers,
Aunt Holly and Uncle Michael
Great news! I hope that you have a peaceful weekend.
Roxie
Hugs to you all from the frigid, frozen, freezing Kittitas Valley.
Glad for your good news and keeping the prayers coming. Wendi R.
Fabulous news...and bless Hans' doctor and team!
May the next round of treatment progress smoothly and find Hans at home Christmas Eve!
Love and hugs,
Aunt Susy
Just read your story on the cnfc webpage/email.
Just want to wish you a very Merry Christmas and will pray for Hans and your family. I hope 2012 will be a good year for you and Hans will be cured then. God bless you all.
Jim M. -Boonsboro, MD
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