- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
Wednesday, November 02, 2011
Hans and Kevin trying on their costumes back in August!
Hans and Honey trying on Halloween Costumes, with Uncle Dean
So, I figured I'd at least post pics of the try-on sessions. I didn't get to even see Elle try hers on - that'll have to change!
Hans is still inpatient. He's still got fever:( It was getting better, but he JUST NOW spiked another 103.2... Yuck. His ANC is taking quite a while to recover...in fact his white blood count is so low that he doesn't even have one yet. He is not eating, and he's
having low Potassium issues. It's like a trifecta of bad factors. His mouth sores are bothering him, which plays into the not eating. He has some new issues too. His urine is showing a few things it shouldn't be... blood, ketones and protein. I guess they are keeping a close eye on him. They've upped his fluid intake. He was sitting up yesterday doing another HUGE Lego Set. (Thank you Santa-Daddy.) Kevin's becoming such a spoiler I think I'm just gonna start calling him Santa;) He was awake all day playing and doing a little set, but as soon as he finished, the fever spiked and he is now resting/crashing. I don't even think I mentioned that he needed a blood transfusion as well as the platelets the other day...
I really just don't know what to say about the stem cell harvest. Might not happen this time around. We are not making counts and he needs to get better anyway. We shall see.
In some really remarkable, fabulous news, Hans got a clean bill of vision from the Opthamologist this morning. I actually heard them chuckling and practically high-fiving out in the hall after they examined Hans. His vision is 20/20. The physical eye exam was as if nothing ever happened. For a recap, early this summer Hans had fast-growing, terrifying, large bumpy NB tumors growing up and out of his skull, as well as tumors pressing into his brain. These tumors caused pressure on the optic nerve which resulted in double vision for about two months. We treated Hans with 20 days of radiation and some three rounds of Irinotecan Temodor and the tumors melted away. It was truly remarkable. "As if nothing ever happened."
I'm going to thank and repost. That's what I'm all about for the next week or so. Thank you kind donors, friends, family, and friends and family of friends and family! You have posted more than $7,000 of support for Hans' Journey to the CNCF. Thank you. Check out his park here. NB families can open a park of their own, if that's your cup of tea. Thanks for visiting Roxie's Scarf It Up! and ordering those scarves. 15% of internet sales thru Nov 10th will go to Hans' Park. She is really pleased with the number of orders coming in. Thanks all around. At times like these, when we have spent 54 of the past 108 nights in the hospital, it just feels good to feel your support!