Hans' neck has sure been bothering him. The lymph nodes are enlarged, and they do light up with NB on the PET and I think the CT. It is scary how things have changed just since Wednesday. He is now in pain, using a hot pack or ice pack and Oxycodone around the clock. He has somewhat limited mobility. He can hardly turn his head or lift his arm on the right side. By Friday night we were thinking we wouldn't last the weekend at home, but we did. We have a surgery consult tomorrow first thing in the morning. We are simply anxious that he get on the new plan, and we're hoping that we and the docs are led to the next perfect move for him. Our options remain - - nothing has been finalized.
If ever there was a time for prayer of the next perfect plan for him, this is it. To me, it seems like it's crucial to get this next choice right. Hans has always bounced back and responded before, but I find my self asking "How many miracles are we afforded?" Roxie says, "You can't count them, miracles are limitless!"
The rest of us are hanging in there. Elle is enjoying her soccer team, she's playing "recreational" this season so we actually get a bit of a break from the schedule, travel and the pressure of competitive soccer - it's more all about fun and exercise - which is good. She even got a hat trick (+1) last weekend - scoring FOUR goals! It was exciting:) She's getting adjusted to life at the new school just fine.
Kevin LOVES his job and his worklife here - it is truly living the good life to be a California Geologist! I wake up each day and I figure my first job is to do whatever it takes that day to beat the NB. The rest of life has to come second right now. The weather here is gorgeous so we've been enjoying our walks, bike rides and park time! I was obsessed this weekend with a few things, getting b'day cards, presents ordered and in the mail, getting Elle a winter coat, getting her Halloween costume ordered. I feel like, I'm home now. I can do this now... let's get it done. Even going into something like a surgery consult in the morning, you just don't know what will come up and whether you'll get "detained" and when you'll make it home. I could be home tomorrow night, or 17 nights for all I know! I'm packing for a few days;) We are so lucky to have the neighbors on constant call for our girl!
Thanks for checking up on us and thanks for your thoughts and prayers for our gorgeous boy. I'll keep you posted once we nail down a plan.
PS - Hans' 5 year anniversary of diagnosis is coming up. I plan to do a CNCF fundraising email/blogger/facebook campaign. I could use a boost, and seeing all the names that are rallied around Hans, while bringing in crucial research and education dollars, will surely help!
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.