We had a big fun day at Disneyland. Hans was doing well and hanging out with his daddy...with special drop ins from Roxie and Aimee, so I felt okay about heading out to Disneyland for the day. It was so fun to see Elle and Claire and Dean enjoying the park! Elle has just started riding the big rides, but as you can tell from her classic pic, above, that she finds them terrifying!
Hans did great yesterday and last night but this morning he has had a headache:( There are 600 reasons for headache, so I am not freaking out about it at this point. He did have to take a little dose of IV Morphine when the Oxy wasn't cutting it! I'm hoping that this just goes and doesn't come back. Last night of the ICE chemo tonight. We honestly don't know how many rounds we are doing of this chemo. We will see how he does and we will see if we can collect some stems cells. Our wonderful doc is setting us up with some home health to come for labs! When Hans heard that he started laughing out loud! Like he was getting away with something! I think he also actually shed a tiny tear. This is a kid that has spent too many days in the hosptial... by my count he's spent at least 45 out of the last 90 days inpatient:( He has had a bit of a rough time with that. He has been saying "I'm just tired of being here. I miss taking Honey on a walk."
We hope to get discharged tomorrow. BUT, we're well aware that pain, fever or some other negative effects could detain him. We are hoping that is NOT the case.
8 comments:
So pleased that you were able to get away for a bit, Lara...and that Hans and Kevin had time with one another!
OOOOH...Elle! Your photo/expression captures my feelings about "rides!" Give me a wild horse ANYDAY! Fun photo!
Home health care sounds like a great alternative to hospital rooms! Hans' laugh is pure delight at the thought!
May there be no more headaches and pain for our brave little guy!
Love and hugs,
Aunt Susy
P.S. Sweet photo of slumbering siblings...wrapping up one another in love!
Hoping you make it home this weekend so Hans can spend time with Honey and the cats. Glad you girls got to go have some wild fun!
Love, hugs and prayers,
Aunt Holly and Uncle Michael
Praying for no more headache and that you get to head home and walk Honey very soon! Thinking of Hans and your entire family!
that first picture is so special, what beautiful siblings.
that second picture (of elle)
is freakin hilarious...made me laugh.
hope you guys get to go home!
xojana
OK, totally love the roller coaster picture of Elle. How funny. It's been a long time since I was on one of those, so I would probably look the same way. lol
Also, the pic of your 2 sleeping angels is precious! Love you guys!
Vicki & family
2 terrific pictures - I rode California Screaming once although I don't usually ride ones that go upside down. I'm glad y'all got to go -
That picture of the two of them sleeping in bed is too cute for words, love it. You're in our prayers.
Post a Comment