I'm sorry to have kept you waiting...I just know how everyone worries
about these kids between posts. I know because I worry about all the
other kids between posts at these scary junctures! Hans has been on
iv antibiotics now almost 72 hours. He does seem to be getting a little
Better! He can move his head better and he is using the pain meds
and hot pad less frequently. Two of five viral tests have come back
negative. We are waiting on the rest. Hans will go into biopsy today.
The surgeon feels better about going in now that he has been on anti-
biotics for a few days. We hope to be able to identify whether it is
infection, nb or something else?? If it is nb we will have a sample
shipped to CHOP for Alk testing. The only new bad news is that Hans
did have one of his awful headaches this morning.,Gosh...poor kid:(
He also has to go NPO all day, as he is just an add on with no official
OR time slot of his own. I know there are 600 reasons for headaches so
I am doing my best to keep my fears at bay and remain my optimistic
Pollyana self about all this. Still hoping for the most treatable/resolvable
option to show up on that slide. All treatment decisions are pending
the biopsy findings and actually the treatments of those findings.
There is a big flow chart. Believe me. This kid will get some treatment
for the NB. And all sites are set for Monday. I'll post prior to Monday
if we get any conclusive results.
Meanwhile our little CA support system has sprung back into action.
Aimee is on food delivery and visiting, Claire and fam next door take in
Elle, and now G'ma Kathy has arrived for Elle duty. Kev and Elle and G'ma will
Join us here at CHLA soon, unless we can convince our team to try a weekend
discharge!. Roxie and my Mom and Uncle Dean come down next week... :)
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.