I wanted to share that our big week of treatment is over. Hans received 5 days of radiation and 5 days of Irinotecan/Temodor. You can already SEE the results! The bump on the top of Hans' head is almost FLAT!
His vision is improved (his eyes are less crossed and he is tracking the doctor's finger tests better), but he still says he is seeing double.
Hans pretty much spent last week asleep and not eating at all. He would actually throw up several times a day, after each of his little meds. He already looks better, awake to watch Saturday morning cartoons at least, but the appetite may take a day or two to come back.
He has only had one complaint of a headache (no more back pain) all week, so we have been weaning him down and off the IV Methadone. He should be on an oral pain med by Sunday or Monday. I am hoping the back pain doesn't come back once he is off the Methadone. He is also being weaned off the Decadron and will go back to his Hydrocortisone tomorrow.
Hans has his MRI of the spine on Monday morning (with Sedation). We must be inpatient to get that slot! Sooo... we will have a mellow hospital weekend. Today and tomorrow will be his first two days that Hans won't have to have any treatment or tests in TEN STRAIGHT DAYS, so we will look forward to it, and hope to be fetching food requests far and wide as his appetite returns.
My mom is going to go ahead and go home for now. Her BFF Pat flew down to make the road trip back up with her. Thanks, Pat!
This week Elle got registered for school, and she is trying out with a couple of different soccer teams. Kevin was able to take three days off this week and has been knocking out our major DIY flooring project and spending time between CHLA and Bakersfield. This is a crazy time, for sure!!!
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.