They are still working on insurance, but the sweet charity funded our temodor for the rest of this week. Hoping they will figure it out before the next round. Of course I'd hate for that to determine future treatment options for Hans! It was sad to see how much of our docs and staff time has been spent on these insurance issues. Time better spent taking care of kiddos for sure!
We had a long day yesterday! We finally checked out of here in the evening after a great check up with the Neuro opthamologist. He pretty much unequivocally said Hans' double vision would go away. It may take time, but he is already making great improvements and all sings point to complete vision recovery.
We are getting chemotherapy in the day hospital at CHLA. It is an adjustment. The inpatient unit is brand spanking new. Hans can deal with it. However, the clinic side is rather ancient and Hans is having a little bit of an adjustment period. When he found out he would be getting chemotherapy here he literally said "that isn't gonna work for me!". I guess my bday present of an iPad doesn't seem so indulgent after all! Hans has had very very long days. The treatment bays are not all equipped with tvs, etc. I'm sure it'll all get assimilated into a new semi normal. Just trying to focus on the good news, that he's getting better!
Thanks to A for putting us up this week, and to Kevin and Elle for driving down after school and work to keep us company last night!
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.