We had an early office visit this morning. I was completely surprised to learn we 'made counts'. Hans' ANC has climbed to 1050! Yay. But, we are holding off starting Round 17 until we get a new plan from CHOP. I just got a brief email that said we should hold off until they review current height/weight info, and review the requirements for Hans getting Neulasta (daily at-home shots to boost white count) on this next round! Wow - I didn't expect to hear that. I am going to try to sit tight and see what that means. I think we might have to open our case back up with Home Health b/c they provide us with all of our syringes and everything necessary to give shots at home. I'm happy to be off the hook, since Kev is 'down with' being the shots guy!
If they've been measuring him right, Hans has grown 2 cm in the last couple of visits! That's quite a growth spurt for our little dude. He's really looking forward to hitting the 48" benchmark as there are many rides and slides with that height requirement. Looks like we're about 5" away now. If only he had some of those big loopy curls back and a pair of cowboy boots, we'd be right there:)
I'll keep you posted as I learn more. And I will happily take Hans back out into the world with this almost normal ANC!!!
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
3 comments:
Great news!!!
Big love and prayers at work!
Love and hugs,
Aunt Susy
Cowboy boots - not a problem. Big loopy curls - more of a challenge! So glad he can get back out in the world. Maybe he can make a surprise visit to school to check on his monkey and bring his little buddies some of his cookie creations!
Love, G.Kathy & G.Dale x0x0
Neulasta dosing should be just once per cycle, I think. (?)
-Stephanie
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