Hans did his MIBG scan this morning, and we met with Dr. Maris,and Jen our NP right after. The scans look good - said Dr. M. Good as in stable.
We had a few things we wanted to discuss with him:
- a possible Dose reduction
- and "spacing out evaulations" as he had mentioned 2 office visits ago
- and, school.
basically we are keeping everything the same, 60 mg dose, scans every six weeks, and homebound schooling for now.
I'll get into the inns and outs a little more later - gotta catch a cab and get to the airport. We did have to move to the Doubletree last night. We have really been hopping around.
Hans had a dip in his labs yesterday. He was down to 2.7 on his potassium. We gave him an extra oral dose and we are back in business at 3.5. Also, his ANC was up to 3000! So - Round 11 is not Round 10. That's a good thing. We are cleared to start Round 12 on Monday. No labs required in between. That's another good thing.
Hans is very ready to see Honey:)
Thanks for your thoughts and prayers for Hans and all our little NB pals.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.