About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Friday, August 27, 2010

Hi, Here we are on Day 5 of this round, Round 12. It does seem that even rounds hit Hans a little harder. Yuck. He sort of has that fried chemo look - sunken in dark circles around his eyes and he looks skinny! His ANC was already 600 yesterday, and at that point, he hadn't even had his fourth dose yet. Here's a pic of just one of his daily doses of meds. Right now, he is asked to swallow 16 pills a day (on the weekends). He only gives us a hard time about the Bactrim, which he feels is optional! He also has backed off on his requirements that I count down backwards from 7 minutes - thank goodness - he just asks for one second. Here's another with a couple of his Bionicles. Sweet boy!

I guess I wanna ramp up the prayers all around. I'm a little nervous about getting through Round 13 and the next scans. Not that there is any new pain, not that there is anything unlucky or cursed about 13, but that's exactly how many rounds he was able to enjoy his second remission on ABT751. I fear that his tumor is just a little slow, but then it figures out how to resist a new drug after a while. So, ramp up the prayers and the image of that pretty clean scan...or cleaner. I believe it can happen!

Our sweeeeet little pal, Patrick, right here at TCH, got some upsetting news of progression and he's going to try to go on that new Seneca Valley oncolytic virus trial. A lot of the kids I follow online, but don't necessarily 'know' are getting bad news or are in a tough spot, inc. Elizabeth, Evan, Liam, and Nick. It really stinks.

So, I guess it's good that we're spending our extra energy on a FUN RUN! Elle and I will go and volunteer and hopefully walk tomorrow. Hans and Kevin will chill out at home. Not getting overheated, keeping out of the crowds with over 500 runners registered so far and an ANC that probably matches! Tamiko has done an impressive job as a first time race director.

Thanks for checking up on us. Lara

1 comment:

Haley said...

Lara, Just wanted to let you know that I'm thinking about you and your family...Haley