Juts a very quick post to say that Hans is doing just fine. He has finished Round 11 (?) of Millennium and is doing okay. It is about now that his symptoms usually crop up - fatigue/darkened eyes/eye pain/headache, and low blood counts. We shall see. This is the 4th round of the upped/60 mg dose. We will at least discuss going back to 50 when we get to Philadelphia next week, but I have a feeling we'll stay where we're at. Hans had a little eye pain this morning...got a Tylenol with Coedine and he should be okay!
We've been packing in a lot of visiting and site seeing in so far (family party, ferry ride, Seattle Aquarium (Hans says he can speak to seals), and lots of swimming and parks. We've been able to see handfuls of friends already and dozens of family members! Thanks to Auntie Anna for driving over from Eastern Washington yesterday so I could meet my niece Hailey! She's sooo sweet - just like her sister.
I have a feeling that now we have to switch gears and slow down our pace. We'll go in for labs Tuesday and Friday this week at Children's Seattle. Hopefully Hans will get by okay without needing a thing.
We lost little Katie (TCH) this past week.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.