About Me

My photo
Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Monday, July 19, 2010

Fried...


The Monkeys...in action at clinic.

Hans looking for his hat, thrown onto a high ledge by that pesky sis. (He loves this hat. We had a neat trip to Home Depot a couple months ago where one crew member took to hans. He came up and placed this hat on his head and Hans has worn it almost every day since. The guy said he was a resident in pediatric oncology and really made a connection with Hans. Also note the gold chain. Part of his everyday look.

The newly painted room!

Elle and her pal Genna treated themselves to a mani/pedi last week.

So, Hans was apparently hit pretty hard with this last round of chemo. We were so glad that we didn't take up Kids Unlimited on their offer of a free trip to Fiesta Texas (an amusement park) in San Antonio (about a three hour drive from us). But - it was sure nice they asked. We just pretty much laid low. Hans was a little fried looking! He had those deepset dark chemo eyes, low energy, low appetite. He was eating much and wasn't talking much. We finally realized he had a couple of mouth sores:( Mouth sores are a noted side effect of MLN8237, but it's just been a bullet we've dodged til now. We are kind of taking a good wallop from the upped dose. This is now the third round of 60mg instead of 50. I think we all wish we could go back to 50. I guess we just have to hope Hansie grows into this dose. Or, I hope the extra 10mg can mop up those stinkin' stubborn tumor cells. UGH. We just returned from TCH where we learned Hans has a whopping 7.9 HGB, platelets at 60 something and an ANC that is a mystery (not back yet). Yuck. Poor kid is taking a while to recover. This is already Day 14 of this past round:(

Whilst Hans wasn't feeling so hot/kickin back, takin it easy with Kev - Elle and I decided to PAINT! She's about to be shipped off ahead of us to Seattle, but we took this weekend to go turn her room into a tween dream. We painted in Purple, silver and chalkboard paint for a graffiti wall. It feels good to be done. But, now I look around and realize that ALL the OTHER rooms in this house could use a fresh coat. Maybe that's what we'll do with each of Hans' rough weekends...paint. Sounds like a nice idea, I'm just not sure if I'm that productive! I'm a little sore from just the one room...

Thanks for checking up on us. We'll get his counts rechecked on Thursday morning. We'll hope that we can avoid a transfusion and that they start to rebound...

Lara

2 comments:

Shannon said...

What a bummer that Hans is getting hit so hard this round. I'll cross my fingers & say a prayer that his counts rise soon! When he feels better, let's get together to swim. You are welcome anytime to my house or we can meet up a pool too :)

Anonymous said...

Elle - your bedroom looks awesome - you girls did a great job!
Hans - hope you're feeling better REALLY soon...bummer.
Hoping counts jump up soon so you can go swimming.
Love, hugs and prayers - Aunt Holly and Uncle Michael