So, we had a surprise. We had a counts check yesterday. It was supposed to be routine, no biggie, go in/get out, get on with our lives and our big plans (sleepover) that night. Well, for the first time EVER in our almost FOUR YEAR history of treatment, Hans turned up at clinic with a fever! I had no clue until they took his vitals. Well, actually I had just commented that his hands felt HOT and I was watching the digital thermometer like a hawk. So - wow. Maybe that explains what we've been noticing. Maybe Hans didn't just take a harder hit from an upped dose of Millennium. He's been a little punky and sluggish, and a lower energy level than usual. Poor dude. But, the good news was, it wasn't that high at 100.2. Sooo, they took a blood culture, and gave us a dose of Rocephin (Antibiotic), some Tylenol, and sent us out the door with our fingers crossed. So far so good. Dr. R. called me to say that the blood culture was negative for a line infection. We are to get a CBC here in The Woodlands on Friday.
The BAD news was that Hans' ANC took a nosedive from last Thursday. It dropped all the way down to 320 from 1500! That's bad because we're not going to make counts to start the next round on Thursday:( His HGB is also not recovering yet...8.5. So, Dr. R suspects that a little virus is affecting his numbers, and I'm going to go with that theory!
So, in the meantime, we're making Hans lay low. He hasn't had a fever since that time in clinic. I am hoping he'll fell well enough to start back up with swimming lessons tomorrow morning. He started this week and it has been fun.
Thanks for thinking of him with any fever-free, counts-rebounding thoughts and prayers. We wanna get that next round of MLN8237 to do it's job ASAP.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.